eBook - ePub
Genomic Data Sharing
Case Studies, Challenges, and Opportunities for Precision Medicine
- 230 pages
- English
- ePUB (mobile friendly)
- Available on iOS & Android
eBook - ePub
Genomic Data Sharing
Case Studies, Challenges, and Opportunities for Precision Medicine
About this book
Genomic Data Sharing: Case Studies, Challenges, and Opportunities for Precision Medicine provides a comprehensive overview of current and emerging issues in genomic data sharing. In this book, international leaders in genomic data examine these issues in-depth, offering practical case studies that highlight key successes, challenges and opportunities. Sections discuss the eMERGE Network, Undiagnosed Disease Network, Vanderbilt Biobank, Marshfield Clinic Biobank, Minnesota Authorization, Rochester Epidemiology Project, NIH sponsored biobanks, GINA, and Global Alliance for Genomics and Health (GA4GH). In addition to these perspectives from the frontlines, the book also provides succinct overviews of ethical, legal, social and IT challenges.Clinician investigators, clinicians affiliated with academic medical centers, policymakers and regulators will also gain insights that will allow them to navigate the increasingly complex ethical, social and clinical landscape of genomic data sharing.
- Covers both technical and ELSI (ethical, legal, and social implications) perspectives on genomic data sharing
- Includes applied case studies of existing genomic data sharing consortia, including the eMERGE Network, Undiagnosed Disease Network, and the Global Alliance for Genomics and Health (GA4GH), among others
- Features chapter contributions from international leaders in genomic data sharing
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Please note we cannot support devices running on iOS 13 and Android 7 or earlier. Learn more about using the app.
Yes, you can access Genomic Data Sharing by Jennifer B. Mccormick,Jyotishman Pathak in PDF and/or ePUB format, as well as other popular books in Medicine & Genetics in Medicine. We have over one million books available in our catalogue for you to explore.
Information
Table of contents
- Cover
- Front Matter
- Table of Contents
- Front Matter
- Copyright
- Contents
- Contributors
- List of Illustrations
- List of Tables
- 1 : Introduction to the volume
- 2 : From public resources to improving health: How genomic data sharing empowers science and medicine
- 3 : Biobank case example: Marshfield clinic
- 4 : Multidirectional genetic and genomic data sharing in the All of Us research program
- 5 : A community approach to standards development: The Global Alliance for Genomics and Health (GA4GH)
- 6 : Clinical genomic data on FHIR®: Case studies in the development and adoption of the Genomics Reporting Implementation Guide
- 7 : Genomics data sharing
- 8 : Data standardization in the omics field
- 9 : Data sharing: The public's perspective
- 10 : Genetic data sharing in the view of the EU general data protection regulation (GDPR)
- 11 : Genomic data sharing and intellectual property
- 12 : Data governance
- Index
- A