Building Continents of Knowledge in Oceans of Data: The Future of Co-Created eHealth

A. Ugon, D. Karlsson, G.O. Klein, Daniel Karlsson, Gunnar O. Klein, Anne Moen

• Publisher: SAGE Publications Ltd
• Year: 2018
• Print ISBN:
  9781614998518
• eBook ISBN:
  9781614998525
• Edition: 1
• Topic: Medicine
• Subtopic: Public Health, Administration & Care

The domain of eHealth faces ongoing challenges to deliver 21st century healthcare. Digitalization, capacity building and user engagement with truly interdisciplinary and cross-domain collaboration are just a few of the areas which must be addressed. This book presents 190 full papers from the Medical Informatics Europe (MIE 2018) conference, held in Gothenburg, Sweden, in April 2018. The MIE conferences aim to enable close interaction and networking between an international audience of academics, health professionals, patients and industry partners. The title of this year's conference is: Building Continents of Knowledge in Oceans of Data – The Future of Co-Created eHealth, and contributions cover a broad range of topics related to the digitalization of healthcare, citizen participation, data science, and changing health systems, addressed from the perspectives of citizens, patients and their families, healthcare professionals, service providers, developers and policy makers. The second part of the title in particular has attracted a large number of papers describing strategies to create, evaluate, adjust or deliver tools and services for improvements in healthcare organizations or to enable citizens to respond to the challenges of dealing with health systems. Papers are grouped under the headings: standards and interoperability, implementation and evaluation, knowledge management, decision support, modeling and analytics, health informatics education and learning systems, and patient-centered services. Attention is also given to development for sustainable use, educational strategies and workforce development, and the book will be of interest to both developers and practitioners of healthcare services.

Table of contents

• Title Page
• Preface. Building Continents of Knowledge in Oceans of Data: The Future of Co-Created eHealth
• List of Reviewers for MIE2018
• Contents
• Detecting and Resolving Data Conflicts when Using International Claims Data for Research
• Exploring Semantic Data Federation to Enable Malaria Surveillance Queries
• Implementation of Fast Healthcare Interoperability Resources for an Integration of Laboratory and Hospital Information Systems
• Integrating Biobank Data into a Clinical Data Research Network: The IBCB Project
• XplOit: An Ontology-Based Data Integration Platform Supporting the Development of Predictive Models for Personalized Medicine
• 3000PA-Towards a National Reference Corpus of German Clinical Language
• Clinical Similarity Based Framework for Hospital Medical Supplies Utilization Anomaly Detection: A Case Study
• Collecting Patient Reported Outcomes in the Wild: Opportunities and Challenges
• From Data Extraction to Analysis: Proposal of a Methodology to Optimize Hospital Data Reuse Process
• NeuroKinect 3.0: Multi-Bed 3Dvideo-EEG System for Epilepsy Clinical Motion Monitoring
• Implementation and Effect of a Novel Electronic Medical Record Format for Patient Allergy Information
• Implementing an Antibiotic Stewardship Information System to Improve Hospital Infection Control: A Co-Design Process
• Profiling Databases to Facilitate Comparison of Child Health Systems Across Europe Using Standardised Quality Markers
• Strategies for Effectively Documenting Sexual Orientation and Gender Identity in Electronic Health Record
• Designing an Authorization System Based on Patient Privacy Preferences in Japan
• Enabling Analytics on Sensitive Medical Data with Secure Multi-Party Computation
• HS.Register - An Audit-Trail Tool to Respond to the General Data Protection Regulation (GDPR)
• Monitoring and Benchmarking eHealth in the Nordic Countries
• openEHR Based Systems and the General Data Protection Regulation (GDPR)
• A Predictive Model for Acute Admission in Aged Population
• Predicting Clinical Outcomes in Colorectal Cancer Using Machine Learning
• Risk Prediction of Diabetic Nephropathy via Interpretable Feature Extraction from EHR Using Convolutional Autoencoder
• Using Machine Learning Approaches for Emergency Room Visit Prediction Based on Electronic Health Record Data
• How Patients Talk About Care? Identifying Patient Experience Expressions from Online Discussions
• Identifying Obstacles and Research Gaps of Telemedicine Projects: Approach for a State-of-the-Art Analysis
• Impact of Imputing Missing Data in Bayesian Network Structure Learning for Obstructive Sleep Apnea Diagnosis
• Applying the Zone of Proximal Development when Evaluating Clinical Decision Support Systems: A Case Study
• A Data-Driven Method of Discovering Misspellings of Medication Names on Twitter
• Estimating a Bias in ICD Encodings for Billing Purposes
• Extracting the Population, Intervention, Comparison and Sentiment from Randomized Controlled Trials
• Automated Differentiation of Incident and Prevalent Cases in Primary Care Computerised Medical Records (CMR)
• Insights into Pharmacotherapy Management for Parkinson's Disease Patients Using Wearables Activity Data
• Uptake of a Dashboard Designed to Give Realtime Feedback to a Sentinel Network About Key Data Required for Influenza Vaccine Effectiveness Studies
• Applications of Machine Learning in Fatty Live Disease Prediction
• Automatic Recognition of Epileptiform EEG Abnormalities
• Patient Stratification Using Longitudinal Data - Application of Latent Class Mixed Models
• Health Professionals' Expanding eHealth Competences for Supporting Patients' Self-Management
• Nursing, Professional Curiosity and Big Data CoCreating eHealth
• Staff Training on the Use of Health Information Systems: What Do We Know?
• Designing an E-Learning Application to Facilitate Health Care Professionals' Cross-Cultural Communication
• Modelling Feedback in Virtual Patients: An Iterative Approach
• An Empirical Approach to Enhancing Terminology Binding - An HL7 FHIR SNOMED CT Example
• Collect Once - Use Many Times: The Research Potential of Low Back Pain Patients' Municipal Electronic Healthcare Records
• Comparing the German Emergency Department Medical Record with the US HL7 Data Elements for Emergency Department Systems
• Compatibility Between Metadata Standards: Import Pipeline of CDISC ODM to the Samply.MDR
• Establishing a Nation Wide Infrastructure for Systematic Use of Patient Reported Information
• Standardising the Development of ODM Converters: The ODMToolBox
• Conception of an Expert Advisory Board for the European Reference Network for Rare Respiratory Diseases
• eHealth-Platforms - The Case of Europe
• Electronic Health Records: From the Management of Patients to the Research Use of Clinical Data
• Last Mile Towards Efficient Healthcare Delivery in Switzerland: eHealth Enabled Applications Could Speed Up the Care Process
• The (Re)-Relaunching of the DMP, the French Shared Medical Record: New Features to Improve Uptake and Use
• Two Years of ePrescription in Slovenia - Applications and Potentials
• Improving Hospital Services Based on Patient Experience Data: Current Feedback Practices and Future Opportunities
• Medical Records Online for Patients and Effects on the Work Environment of Nurses
• Reducing Nosocomial Infections in Surgical ICUs in Sri Lanka: Co-Creating a Safety Culture Using an eHealth Intervention
• Revealing Work Practices in Hospitals Using Process Mining
• Risk and Disaster Management: From Planning and Expertise to Smart, Intelligent, and Adaptive Systems
• Consumer Smartwatches for Collecting Self-Report and Sensor Data: App Design and Engagement
• Fit by Bits: An Explorative Study of Sports Physiotherapists' Perception of Quantified Self Technologies
• Monitoring Daily Physical Conditions of Older Adults Using Acoustic Features: A Preliminary Result
• Reflection on Mobile Applications for Blood Pressure Management: A Systematic Review on Potential Effects and Initiatives
• YORwalK: Desiging a Smartphone Exercise Application for People with Intermittent Claudication
• Enhancing Safety of Artificially Ventilated Patients Using Ambient Process Analysis
• Minimal Important Difference in Outcome of Disc Degenerative Disease Treatment: The Patients' Perspective
• Physicians' Perceptions About PHR for Inpatients. Qualitative Study
• The Evaluation of Decision Support Tools Requires a Measure of Decision Quality That Has Content and Construct Validity in Person-Centred Care
• Timing It Right - Patients' Online Access to Their Record Notes in Sweden
• Understanding Study Participants Views on Co-Creation of Data and Use of EHR in Clinical Studies
• A Method for Developing Standard Patient Education Program
• Typology of Drug Misuse Created from Information Available in Health Fora
• Consequences of Switching to Blended Learning: The Grenoble Medical School Key Elements
• The Importance of Data Quality and Context Information in Indicator Production: Proof of Concept in a Metropolitan Paediatric Emergency Department
• Vaccine Hesitancy in Discussion Forums: Computer-Assisted Argument Mining with Topic Models
• Medical Data Analytics Is Not a Simple Task
• Process Mining in Primary Care: A Literature Review
• Towards Unsupervised Detection of Process Models in Healthcare
• Gaining Insights on Nasopharyngeal Carcinoma Treatment Outcome Using Clinical Data Mining Techniques
• PaFloChar: An Innovating Approach to Characterise Patient Flows in Myocardial Infarction
• SCREEN-DR. Software Architecture for the Diabetic Retinopathy Screening
• Architecture and Initial Development of a Knowledge-as-a-Service Activator for Computable Knowledge Objects for Health
• Biomedical Informatics - How to Choose the Best Tool for Each Task
• Shared Medical Imaging Repositories
• Climate Change and Health as Massive Open Online Courses
• Signal Detection for Baclofen in Web Forums: A Preliminary Study
• Introducing Technical Aspects of Research Data Management in the Leipzig Health Atlas
• The Perspective of Nurses on Nursing Information System: A Case Study in a Developing Country
• Geo-Distinctive Comorbidity Networks of Pediatric Asthma
• Sifting Through Chaos: Extracting Information from Unstructured Legal Opinions
• A Framework for Usability Evaluation in EHR Procurement
• A Qualitative Evaluation of a Decision Support System for District-Level Disease Surveillance in Sierra Leone
• Midlevel Maternity Providers' Preferences of a Childbirth Monitoring Tool in Low-Income Health Units in Uganda
• Preliminary Evaluation of an Electronic Patient Prioritization Tool for Pediatric Emergency Department
• User Evaluation of a Smartphone Application for Anticoagulation Therapy
• Views of Health Information Management Staff on the Medical Coding Software in Mashhad, Iran
• A Review of Decision Support Systems for Smart Homes in the Health Care System
• An mHealth Application for Educating and Monitoring Patients Treated with a Ketogenic Diet Regimen
• Assessing Information Needs for a Personal Multiple Sclerosis Application
• From Narratives to Numbers: Data Work and Patient-Generated Health Data in Consultations
• MOVE: A Mobile App Designed for Social Health Relations in Residential Areas
• A Feasibility Study on the Implementation of Teleconsultation in Tuberculosis Patients in Zabol City of Iran
• Acceptance of a Mobile Application Supporting Nurses Workflow at Patient Bedside: Results from a Pilot Study
• Implementation of a New Traceability Process for Breast Milk Feeding
• Modelling Levels of Collaboration Among Health and Social Care Professionals in the Management of a Mental Health Plan
• Obstacles to Successful Implementation of eHealth Applications into Clinical Practice
• Pros and Cons of Clinical Pathway Software Management: A Qualitative Study
• A Knowledge-Base for a Personalized Infectious Disease Risk Prediction System
• Advantages of a Web-Based Real-Time Bed-Management System for Hospital Admission Monitoring in Iran
• Combining the Generic Entity-Attribute-Value Model and Terminological Models into a Common Ontology to Enable Data Integration and Decision Support
• Interactive Dialogue-Based Patient Education for Juvenile Idiopathic Arthritis Using Argument Theory
• On Defining Bruxism
• Using RDF and Git to Realize a Collaborative Metadata Repository
• A Methodology for Fine-Grained Access Control in Exposing Biomedical Data
• Opportunities and Pitfalls in the Definition of Data Validity
• Retrieving the Vital Status of Patients with Cancer Using Online Obituaries
• Using Model-Based Recursive Partitioning for Treatment-Subgroup Interactions Detection in Real-World Data: A Myocardial Infarction Case Study
• Using the Personal Health Train for Automated and Privacy-Preserving Analytics on Vertically Partitioned Data
• Electronic Health Services in the Patients' Daily Activities - Willingness to Use Health Village Services
• How Can Information and Communication Technology Improve Healthcare Inequalities and Healthcare Inequity? The Concept of Context Driven Care
• Medical System Choice: Information That Affects the Selection of Healthcare Provider in Australia?
• Supporting Patient Self-Care: Examining Nurses' Practices in a Remote Care Setting
• TASoMe: Validating a Framework to Generate Evidence About Health Outcomes from Social Media Use
• The Need of an Open Data Quality Policy: The Case of the "Transparency - Health" Database in the Prevention of Conflict of Interest
• AID-GM: An Advanced System Supporting Continuous Monitoring of T1DM Patients
• Metadata to Describe Genomic Information
• Multi-Sided Markets for Transforming Healthcare Service Delivery
• Semi-Automatically Measuring Shoulders' Range of Motion - Objective Measurements with Good Reliability and Accuracy
• Socio-Technical Considerations for the Use of Blockchain Technology in Healthcare
• Topic Repetition in Conversations on Different Days as a Sign of Dementia
• Digitalization of Healthcare: Where Is the Evidence of the Impact on Healthcare Workforce' Performance?
• The Reliability of Using Tablet Technology for Screening the Health of Older Adults
• Transparency and Quality of Health Apps: The HON Approach
• An Automated Technique to Construct a Knowledge Base of Traditional Chinese Herbal Medicine for Cancers: An Exploratory Study for Breast Cancer
• Analysis of MeSH Indexing Patterns and Frequency of Predicates
• Approach Towards an Evidence-Oriented Knowledge and Data Acquisition for the Optimization of Interdisciplinary Care in Dentistry and General Medicine
• Generalizing the Arden Syntax to a Common Clinical Application Language
• Unsupervised Information Extraction from Behaviour Change Literature
• Assessing the Satisfaction of Citizens Using Teleconsent in Clinical Research
• Asynchronous Dermatology Teleconsultations Using a Personal Health Record
• Evaluation of the Technology Acceptance of a Collaborative Documentation System for Addiction Therapists and Clients
• Interoperability Assets for Patient Summary Components: A Gap Analysis
• Automated Syntactic Analysis of Language Abilities in Persons with Mild and Subjective Cognitive Impairment
• Automatic Annotation of French Medical Narratives with SNOMED CT Concepts
• Automatic Processing of Anatomic Pathology Reports in the Italian Language to Enhance the Reuse of Clinical Data
• Fine-Tuning Neural Patient Question Retrieval Model with Generative Adversarial Networks
• Improving Layman Readability of Clinical Narratives with Unsupervised Synonym Replacement
• User Profile Detection in Health Online Fora
• Building a Knowledge-Based Tool for Auto-Assessing the Cardiovascular Risk
• Building Bayesian Networks from Causal Rules
• Knowledge-Driven Interpretation of Multi-View Data in Medicine
• Personalised Care Plan Management Utilizing Guideline-Driven Clinical Decision Support Systems
• Taking into Account the Complementarity of Contemporary Breast Cancer Guidelines to Leverage Decision Support in the DESIREE Project
• Designing an Online Social Support Platform Through Co-Creation with Seniors
• Engaging Stakeholders in the Design and Usability Evaluation of a Decision Aid to Improve Secondary Stroke Prevention
• Making the CARE Comprehensive Geriatric Assessment as the Core of a Total Mobile Long Term Care Support System in China
• Older Adults Co-Creating Meaningful Individualized Social Activities Online for Healthy Ageing
• Personalized Knowledge Transfer for Caregiving Relatives
• A Mobile Early Stimulation Program to Support Children with Developmental Delays in Brazil
• Addressing the Socio-Technical Challenges of Health Information Exchange Adoption: DataWell in Greater Manchester
• Quasi-Monopoly Status of a Non-for-Profit Reference Terminology Provider - An Exemplary Approach on Transparency Improvement Regarding Licensing
• Ready for HIT Innovations? Developing a Tool to Assess the Professionalism of Information Management in Hospitals
• Representing the Aboutness of a Diagnosis
• A Decision Support Tool for Healthcare Professionals in the Management of Hyperphosphatemia in Hemodialysis
• A Synthesis of Students' Theses in the Accredited HHSI Master's Programme
• An Analytical Method for Multimorbidity Management Using Bayesian Networks
• Learning Healthcare Systems: Scaling-Up Integrated Care Programs
• Use of System Dynamics Modeling in Medical Education and Research Projects
• Challenges in Design and Creation of Genetic openEHR-Archetype
• Implementing Modular Research Consents Using IHE Advanced Patient Privacy Consents
• Intercoder Reliability of Mapping Between Pharmaceutical Dose Forms in the German Medication Plan and EDQM Standard Terms
• Interoperable Localisation of Lesions on the Human Skin
• Radiation Oncology Terminology Linker: A Step Towards a Linked Data Knowledge Base
• Data Modeling Challenges of Advanced Interoperability
• Front-Line Physicians' Satisfaction with Information Systems in Hospitals
• Implementing Pharmacogenomic Clinical Decision Support into German Hospitals
• Implementing Systems Medicine: A Medical Informatics Perspective
• Towards Pharmacogenomics-Driven Medication Risk Assessment in People with Polypharmacy
• Translating eHealth Visions from Strategy to Practice - A Benefit Management Approach
• A Modular Ontology for Modeling Service Provision in a Communication Network for Coordination of Care
• A System for Supporting Development and Update of the International Classification of Health Interventions (ICHI)
• Clarifying Diagnoses to Laymen by Employing the SNOMED CT Hierarchy
• Combining Semantic and Lexical Methods for Mapping MedDRA to VCM Icons
• Scrutinizing SNOMED CT's Ability to Reconcile Clinical Language Ambiguities with an Ontology Representation
• Selection of Semantic Relevant Healthcare Services Subsets
• A Personalized Risk Stratification Platform for Population Lifetime Healthcare
• Developing an eHealth Tool to Support Patient Empowerment at Home
• Extent of Use of Electronic Records in Children's Primary Care and Public Health in Europe
• Improving Patient Experience in a Children's Hospital: New Digital Services for Children and Their Families
• Mapping of Health Care Providers for People with Rare Diseases - From Vision to Implementation
• The Presence of eHealth Support for Childhood Obesity Guidance
• Subject Index
• Author Index