Integrated Citizen Centered Digital Health and Social Care

Citizens as Data Producers and Service co-Creators

A. Värri, J. Delgado, P. Gallos, Jaime Delgado, Maria Hägglund, Kristiina Häyrinen, Ulla-Mari Kinnunen, Louise B. Pape-Haugaard

• Publisher: SAGE Publications Ltd
• Year: 2020
• Print ISBN: 9781643681443
• eBook ISBN: 9781643681450
• Edition: 1
• Topic: Medicine
• Subtopic: Public Health, Administration & Care

As citizens, we must all take responsibility for our own health to some extent, and recent developments in medical informatics have provided some valuable new ways to help us do that. This book presents the proceedings of the 2020 Special Topic Conference of the European Federation for Medical Informatics (EFMI STC 2020), held for the first time as a virtual conference on 26 & 27 November 2020, due to restrictions associated with the COVID-19 pandemic. Entitled Integrated citizen centered digital health and social care – Citizens as data producers and service co-creators, this conference focused on the citizen-centered aspects of health informatics. This topic provided the opportunity for contributors to present innovative solutions to allow citizens to take greater responsibility for their health with the help of information and communication technology, and the 52 presented papers published here cover a wide range of areas under the broad, invited subject headings of: tools and technologies to support citizen-centered digital services; capacity building to enhance the development and use of digital services; confidentiality, data integrity and data protection to guarantee trustworthy services; citizen safety in digital services; effectiveness and impact of citizen-digital and integrated health and social services; evaluation approaches and methods for digital services; usability, usefulness and user acceptance of digital services; and guidelines for the successful implementation of digital services for citizens. Offering a current overview of research and applications, the book will be of interest to all those health professionals working to increase citizen use of digital healthcare.

Table of contents

• Title Page
• Preface
• Contents
• EFMI STC 2020 Scientific Programme Committee and Reviewers
• Visualization of Guideline-Based Decision Support for the Management of Pressure Ulcers in Nursing Homes
• Exploring the Social Drivers of Health During a Pandemic: Leveraging Knowledge Graphs and Population Trends in COVID-19
• Integrating Patient-Generated Health Data in an Electronic Medical Record: Stakeholders' Perspectives
• Integrating Healthcare Data for Enhanced Citizen-Centred Care and Analytics
• Implementing an Urban Public Health Observatory for (Near) Real-Time Surveillance for the COVID-19 Pandemic
• Dashboard Visualization of Information for Emergency Medical Services
• Latent COVID-19 Clusters in Patients with Chronic Respiratory Conditions
• Security and Privacy when Applying FAIR Principles to Genomic Information
• SLEEPexpert App - A Mobile Application to Support Insomnia Treatment for Patients with Severe Psychiatric Disorders
• Measures of Decision Aid Quality Are Preference-Sensitive and Interest-Conflicted - 1: Normative Measures
• Measures of Decision Aid Quality Are Preference-Sensitive and Interest-Conflicted - 2: Empirical Measures
• Acceptance Study on the Usage of Health-Enabling Technologies in Therapy and Diagnostics for People with Mental Disorders
• From Personalised Predictions to Targeted Advice: Improving Self-Management in Rheumatoid Arthritis
• What is Digital Health? Review of Definitions
• Usability of Remote Assessment of Exercise Capacity for Pulmonary Telerehabilitation Program
• Personalization Dimensions for MHealth to Improve Behavior Change: A Scoping Review
• Mobile Access and Adoption of the Swedish National Patient Portal
• Chronic Disease Self Management Using a Social Networking PHR/UHR
• A Secure Protocol for Managing and Sharing Personal Healthcare Data
• Technology Supporting Nursing at Homecare - Seems to Be Lacking
• Health Professionals' Perceptions and Reactions to ICT-Related Patient Safety Incidents
• From Atomic Guideline-Based Recommendations to Complete Therapeutic Care Plans: A Knowledge-Based Approach Applied to Breast Cancer Management
• Automatic Exploitation of YouTube Data: A Study of Videos Published by a French YouTuber During COVID-19 Quarantine in France
• Reuse of Clinical COVID-19 Patient Data: Pre-Processing for Future Classification
• Development and Validation of Standardized Pain Management Documentation
• Patient-Centered Development of a Digital Care Pathway for Arrhythmia Patients
• Word-Final Phoneme Segmentation Using Cross-Correlation
• A Decentralized Framework for Biostatistics and Privacy Concerns
• Do You Know Who Is Talking to Your Wearable Smartband?
• The Effect of Chronic Diseases on the Use of Health Technology and Digital Services in the Elderly Population in Finland
• Personalized Predictive Models for Identifying Clinical Deterioration Using LSTM in Emergency Departments
• Electronic Health Record System-Related Patient Safety Incidents - How to Classify Them?
• Semantic Clustering to Augment Qualitative Content Analysis in Exploring Reasons for Emergency Department Transfer Delays
• Health Data Privacy: Research Fronts, Hot Topics and Future Directions
• Multicriteria Decision Support Would Avoid Overdiagnosis and Overtreatment
• Creating Synthetic Patients to Address Interoperability Issues: A Case Study with the Management of Breast Cancer Patients
• The New Smart-Meds: Redesign of a Gamified App to Improve Medication Adherence Using a Mixed Methods Design
• New Scopes for Practice - Interdisciplinary Webinars for Emergency Medicine and Biomedical Informatics - Health Informatics
• Description of Data Breaches Notifications in France and Lessons Learned for the Healthcare Stakeholders
• User-Centred Design with a Remote Approach: Experiences from the Chronic Pain Project
• Analysis of ISO/TS 21526 Towards the Extension of a Standardized Query API
• Effects of User Participation in the Development of Health Information Systems on Their Evaluation Within Occupational Health Services
• Typology-Based Analysis of Covid-19 Mobile Applications: Implications for Patient Empowerment
• The Master Study in Telemedicine and E-health at the University of Tromso, Norway, 2005-2018
• Health Informatics Solutions in Response to COVID-19: Preliminary Insights from an International Survey
• Continuity of Health, Citizen Empowerment as Key Driver
• Digital Allergy Card: Design and Users' Perceptions
• Physical Activity in Cardiac Rehabilitation: Towards Citizen-Centered Digital Evidence-Based Interventions
• Citizens' Opinions About a Digital Health Insurance Record
• Semi-Automated Method to Generate Simulated Clinical Data from OpenEHR Platform - Think!EHR
• Standardizing the Unit of Measurements in LOINC-Coded Laboratory Tests Can Significantly Improve Semantic Interoperability
• The Drug Addicts' Usage of Information and Communication Technologies
• Subject Index
• Author Index