1. A Cultural Right to Know
1. The website for the Thomas Jefferson Foundation, the private foundation that operates Jeffersonâs home, Monticello, and compiles the online Thomas Jefferson Encyclopedia, lists in one part of the website thirty-eight famous Jefferson quotationsâand forty-eight spurious ones. To read more about âinformation is the currency of democracy,â see www.monticello.org/site/jefferson/information-currency-democracy-quotation. The earliest mention the Thomas Jefferson Foundation has located that attributes this quotation to Jefferson is 1987. Various websites attribute the quote to Jeffersonâfor instance, ThinkExist.com with its motto âFinding Quotations Was Never This Easy!â or BookBrowse.com (both accessed July 14, 2014). That Jefferson never said or wrote this is further confirmed in email to the author from Anna Berkeles, research librarian, Thomas Jefferson Foundation, June 7, 2013.
2. Ralph Nader, The Ralph Nader Reader (New York: Seven Stories Press, 2000). âInformation is the currency of democracyâ appears in both Naderâs January 10, 1986, article from the New Statesman, âKnowledge Helps Citizens, Secrecy Helps Bureaucratsâ (51) and his December 2, 1996, article from Forbes, âDigital Democracy in Actionâ (403). In an important early critique of the Freedom of Information Act (âFreedom from Information: The Act and the Agenciesâ), Nader wrote: âA well informed citizenry is the lifeblood of democracy; and in all arenas of government, information, particularly timely information, is the currency of power.â See âFreedom from Information: The Act and the Agencies,â Harvard Civil RightsâCivil Liberties Law Review 5 (1970): 1â15, at 1.
3. Gerald Markowitz and David Rosner, Deceit and Denial: The Deadly Politics of Industrial Pollution (Berkeley: University of California Press, 2002), 3.
4. David M. OâBrien, The Publicâs Right to Know (New York: Praeger, 1981), 32.
5. Hugh Heclo, âThe Sixtiesâ False Dawn: Awakenings, Movements, and Postmodern Policy-making,â in Brian Balogh, ed., Integrating the Sixties (University Park: Pennsylvania State University Press, 1996), 34â63, at 57.
6. Interview with Sarah Cohen, September 24, 2009, former Washington Post reporter, in 2009 professor of public policy at Duke University, and now a reporter and editor at the New York Times.
7. James Wilson, cited in OâBrien, The Publicâs Right to Know, 38.
8. âDraft Structural Amendments to the Constitution, ante-27 June,â in John P. Kaminski, Gaspare J. Saladino, Charles H. Schoenleber, and Margaret A. Hogan, eds., The Documentary History of the Ratification of the Constitution Digital Edition (Charlottesville: University of Virginia Press, 2009), 10:1548â1549.
9. Patrick Henry and George Mason, cited in OâBrien, The Publicâs Right to Know, 39.
10. Cooperâs remarks (from a speech at Temple Emanu-El in New York) are cited in an editorial, âThe Right to Know,â New York Times, January 23, 1945. The Times calls it âa good new phrase for an old freedom.â
11. Simon Hoggart, âOnce Again, Bafflement Abroad,â New York Times, March 23, 1994. Hoggart had served as Washington correspondent for the Observer and was a political reporter for the Guardian at the time.
12. Amy Farrell, âAttentive to Difference: Ms. Magazine, Coalition Building and Sisterhood,â in Stephanie Gilmore, ed., Feminist Coalitions: Historical Perspectives on Second-Wave Feminism in the United States (Urbana: University of Illinois Press, 2008), 48â62.
13. John B. Thompson, âThe New Visibility,â Theory, Culture and Society 22 (2005): 31â51, at 38.
14. Dominique Mehl, âThe Public on the Television Screen: Towards a Public Sphere of Exhibition,â in Sonia Livingstone, ed., Audiences and Publics (Bristol, UK: Intellect Books, 2005), 77â96, at 90.
15. On Johnsonâs gall bladder operation, see Robert E. Gilbert, âThe Political Effects of Presidential Illness: The Case of Lyndon B. Johnson,â Political Psychology 16, no. 4 (December 1995): 761â776. On the Eisenhower-Johnson meeting, see Jack Valenti, âMemorandum of Presidential Visit with General Eisenhower,â October 13, 1965, entered into the Presidentâs daily diary, Lyndon B. Johnson Presidential Library, Austin, Texas. The phrase âabdominal showmanâ became a popular joke as George Dixon reported in his âWashington Sceneâ column in the Washington Post, November 6, 1965.
16. Rick Perlstein, âBetty Ford, Pioneer,â New York Times, July 12, 2011.
17. Betty Ford, âBetty Ford Today: Still Speaking Outâ (interview by Gloria Steinem), Ms., April 1984, 41â42, 94â95, at 42. See also John Robert Greene, Betty Ford (Lawrence: University Press of Kansas, 2004), 45â51, and Ron Nessen, It Sure Looks Different from the Inside (Chicago: Play Press, 1978), 19â28. A valuable discussion of changing doctor-patient relations is Jonathan Imber, âDoctor No Longer Knows Best,â in Alan Wolfe, ed., America at Centuryâs End (Berkeley: University of California Press, 1991), 298â317.
18. Donald Oken, âWhat to Tell Cancer Patients,â Journal of the American Medical Association 175, no. 13 (April 1, 1961): 86â94.
19. Dennis H. Novack, Robin Plumer, Raymond L. Smith, Herbert Ochitill, Gary R. Morrow, and John M. Bennett, âChanges in Physiciansâ Attitudes toward Telling the Cancer Patient,â Journal of the American Medical Association 241, no. 9 (March 2, 1979): 897â899.
20. Elisabeth KĂźbler-Ross, On Death and Dying (New York: Macmillan, 1969).
21. David J. Rothman, Strangers at the Bedside (New York: Basic Books, 1991).
22. Ibid., 89.
23. Joshua Gamson, Freaks Talk Back (Chicago: University of Chicago Press, 1991), 68.
24. Ibid., 70.
25. Ibid., 100.
26. Ibid., 118.
27. Ibid., 167.
28. Thomas Nagel, âConcealment and Exposure,â Philosophy and Public Affairs 27 (1998): 3â30. On civil inattention, see Erving Goffman, Relations in Public (New York: Basic Books, 1971). Goffman uses the term many times in this book, defining it as âpersons circumspectly treating one another with polite and glancing concern while each goes about his own separate businessâ (331â332). On the decision legitimating the privacy from government of the NAACPâs membership lists, see N.A.A.C.P. v. Alabama, 357 U.S. 449 (1958).
29. Ann Douglas, Terrible Honesty: Mongrel Manhattan in the 1920s (New York: Farrar, Straus and Giroux, 1995), 33â34.
30. Cas Wouters, Informalization: Manners and Emotion since 1890 (London: Sage, 2007).
31. In Grand Expectations: The United States, 1945â1974 (New York: Oxford University Press, 1996), prominent historian James Patterson offers a sentence on the Freedom of Information Act and a couple of pages on campaign finance reform with but a single sentence on disclosure, no mention of informed consent in medicine, and half a dozen mentions of Gerald Ford but none of Betty Ford. In a popular history of the 1970s with the striking title It Seemed like Nothing Happened: The Tragedy and Promise of America in the 1970s (New York: Holt, Rinehart and Winston, 1982), Peter Carroll mentions campaign finance reform, but without noting that disclosure was among its provisions. He does not mention informed consent in medicine or medical research, nor the Freedom of Information Act (passed in 1966 but made into a significant force only when it was strengthened in 1974). Carroll mentions the National Environme...