Haemophilia in Aotearoa New Zealand provides a richly detailed analysis of the experience of the bleeding disorder of haemophilia based on longterm ethnographic research. The chapters consider experiences of diagnosis; how parents, children, and adults care and integrate medical routines into family life; the creation of a gendered haemophilia; the use and ethical dilemmas of new technologies for treatment, testing and reproduction; and how individuals and the haemophilia community experienced the infected blood tragedy and its aftermath, which included extended and ultimately successful political struggles with the neoliberalising state. The authors reveal a complex interplay of cultural values and present a close-up view of the effects of health system reforms on lives and communities. While the book focuses on the local biology of haemophilia in Aotearoa New Zealand, the analysis allows for comparison with haemophilia elsewhere and with other chronic and genetic conditions.

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Yes, you can access Haemophilia in Aotearoa New Zealand by Julie Park,Kathryn Scott,Deon York,Michael Carnahan in PDF and/or ePUB format, as well as other popular books in Social Sciences & Anthropology. We have over one million books available in our catalogue for you to explore.

Information

Publisher

Year

Print ISBN

eBook ISBN

Edition

Topic

Social Sciences

Subtopic

Anthropology

Index

Social Sciences

Cover
Title Page
Copyright Page
Dedication
Contents
List of figures and tables
List of boxes
Abbreviations
Acknowledgments
Foreword by Jan-Willem André de la Porte
Foreword by Dr Elizabeth Berry
1 A bleeding nuisance in Aotearoa New Zealand
2 ‘Pretty normal really’
3 Blood and sacrifice: Sex, gender, and haemophilia
4 New networks and technologies of care: Different haemophilias
5 The shadow on our lives: Hepatitis C in the haemophilia community
6 Joint action: Asserting rights, inclusion, and equity through voluntary association
7 Conclusion
Glossary
Index

About this book

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Table of contents