Section 1
Appreciating dimensions of loss, death, dying and bereavement
1
Death, social losses and the continuum of disenfranchised grief for prisoners
Sue Read and Sotirios Santatzoglou
Introduction
Death never occurs in a vacuum but within a social context, the nature of which can influence greatly how the person deals with that loss, or how individuals cope when confronted with the inevitability of the end of their lives, and how others accommodate the death of their friend or family member (Read, 2006). Particular social contexts can have a huge impact on how the experience is lived, where individuals receive their support, when they can expect care and support and indeed who they receive this care and support from.
Whilst death is a tangible loss, and for the most part the most difficult of losses to accommodate, people experience many other losses throughout their lives that can feel equally painful, but may be less tangible or visible, and subsequently not be as easily acknowledged or openly, constructively and consistently supported (Read, 2014). Life is characterised by movement and change and therefore by its very nature, by transitions, losses and grief (Thompson, 2002). Oswin poignantly reminds us of the importance of loss when she described how âit sometimes seems as if all our lives we are trying to cope with loss â either the fear of it, or the memory of it or its raw immediate presenceâ (Oswin, 1991: 15). Subsequently loss remains omnipresent (Read, 2011).
There are many different types of loss. Schultz and Harris (2011) describe these losses as either being common (such as losses experienced through growing up and growing old), uncommon (such as abandonment, abuse, migration and violent death) or non-finite. The latter is described as a continuing presence of the loss, which, because it may not necessarily involve death, may go unrecognised and thus be difficult to articulate and explain. Machin (2009) identifies three distinct types of loss: developmental, which occur across the life course; circumstantial, unpredictable loss, incorporating changes in relationships, ill health and disability and death; and invisible grief and undervalued people, where marginalised communities rarely receive the support they need following a loss (Machin, 2009). Arguably, this invisible loss is particularly evident in the marginalised community of prisoners and offenders in general, and remains an under-researched issue (Vaswani, 2014). As Olson and McEwen indicate, âVery little information can be found in the literature on bereaved prisoners, and it appears that their grief may not be of great concern to othersâ (2004: 226).
This chapter will consider the experience of loss and bereavement within the community of prisoners, which is based on papers related to bereavement care in prison. The chapter is also informed by the stories and views of professionals, which were collected during a small-scale qualitative research study.1 The overarching aim of this research study was to explore existing bereavement support mechanisms with respect to offenders. The study involved focus groups and interviews with professionals, such as prison bereavement counsellors, community palliative care professionals, prison nurses, hospice workers and a prison chaplain.
The bereaved prisoner and the types of losses
Schetkyâs paper (1998), titled âMourning in Prison: Mission Impossible?â provided an early account about types of losses within a prison setting. Her account considered five groups of losses reflecting her learning experiences from the implementation of a support group scheme. Schetkyâs account did not distinguish between death and other losses, but primarily between incarceration-associated and non-incarceration-associated losses. The former were distinguished into two groups: (a) the loss of contact with âchildren and loved onesâ, which was discussed first, and (b) the loss of self-esteem, professional identity, choice of medical care and material possessions, which were addressed second. With respect to the loss of contact, Schetky explained that
men lost contact with children and, in some cases, had their parental rights terminated⊠[whilst] [s]ome lost all contact with siblings with whom they had once been close and had no knowledge of family of their whereabouts.
(Schetky, 1998: 386)
Loss of contact could also include the difficulty in receiving news about âterminally ill relativesâ. As Schetky indicated, some of the inmates âdescribed the frustration of trying to get through to them on the prison phone systemâ whilst others âdescribed their anguish at being informed of the deaths of loved ones only after their funeralsâ (Schetky, 1998: 386). Schetky also considered losses which had âoccurred in the course of the group and included transfers of inmates, absences of the co-facilitators due to vacations or professional meetings, deaths or terminal illness in family members, moves by family members, and the deaths of several inmatesâ (1998: 386). Some of these losses, such as âthe transfers or the deaths of several inmatesâ, should be seen as incarceration-associated losses. The consideration of similar incarceration-associated losses were addressed in further papers, such as Bolgerâs (2005), on dying in prison and the palliative care challenges therein, or Hendryâs (2009) review of bereavement and prison nursing papers from 1998 to 2007. Bolger (2005) and Hendry (2009), both pointed to the âobviousâ forms of loss arising from incarceration, such as âloss of liberty, loss of family contacts and loss of life yearsâ (Hendry, 2009: 271; Bolger, 2005: 619). Hendry also listed the loss of âmaterial possessions, heterosexual contact, privacy, personal autonomy and personal securityâ as âidentified losses of prison lifeâ (Hendry, 2009: 272).2
With respect to losses which did not arise due to incarceration as they were concerned with other life phases, Schetky considered â[c]hildhood losses and abuseâ. Schetky indicated that these losses âwere commonâ amongst the group of inmates and she addressed them after the first group of incarceration-associated losses, the loss of contact with âchildren and loved onesâ. Schetky mentioned the experience of one inmate who âwas dealing with his adoption and reconciliation with his birth motherâ (Schetky, 1998: 386). A further group of losses was the loss of âa child through death, adoption, or alienationâ. Schetky did not clarify whether these were experiences before or during incarceration but said that this loss âwas shared by several membersâ of the group, who had ânoted that the hurt never leaves and how much harder it is to deal with the loss of a childâ (Schetky, 1998: 386). Therefore, Schetkyâs account did not distinguish between death and other losses, but primarily between incarceration-associated and non-incarceration-associated losses.
Further ways of listing types of losses can be found in other papers concerning children and young people in custody, such as the report of the Childhood Bereavement Network (CBN), which considered only the experience of death (and no other losses) by children and young people before they came into custody, as well as âwhile they are thereâ (CBN, 2008). In relation to the period before custody, the report referred to âdeaths of parents, siblings, grandparents, extended family members, partners, friends and childrenâ (CBN, 2008: 1). Regarding the deaths of grandparents, the report indicated that âtheir death is likely to be very significant,â when they had âbeen involved in caring for a young person or providing rare stabilityâ (CBN, 2008: 1). Furthermore, the report indicated the âsmall number of casesâ where the deaths, which were âvery significant in the young personâs life such as a partner or friendâ, had resulted from young peopleâs âown offencesâ (CBN, 2008: 1). With respect to the period in custody, the report stated that the deaths concerned âboth staff members and peersâ (CBN, 2008: 1). In a further account also concerning young male inmates in England and Wales and their death bereavement experiences, Vaswani distinguished between multiple âsubstantialâ and ârecentâ bereavements (rather than before or during custody) (2014: 345). Vaswani further categorised these bereavements into two types: âtraumaticâ bereavements, which were âcaused by overdose, accident, murder or suicide, regardless of the participantâs experience of that bereavementâ; and âparentalâ, which were caused by the death of a âbiological parent, step-parent or main carerâ (2014: 345). Therefore, these accounts pointed out the significance of death and bereavement experiences in the lives of young inmates in England and Wales.
Importantly, in a subsequent article, titled âA Catalogue of Lossesâ, Vaswani (2015) considered an overarching typology of losses beyond the experience of death bereavements for young men in custody. The typology included loss of future; loss of relationships; loss of status, in particular the loss of power and agency that can arise from the need to assimilate into prison culture; and loss of stability â often due to a disrupted and troubled childhood. The overarching typology of losses reflected Vaswaniâs interest in the significance of life âuncertaintiesâ experienced amongst young people involved in offending, such as âfamily breakdown, abuse and neglect, and periods in placements away from homeâ (2015). Vaswani indicated that âeach of these can be experienced as a devastating lossâ which âmany young people in prison⊠carry with themâ (2015). Notably, Vaswaniâs latter account made a bold distinction between death and other losses in order to signify their importance. This raises the issue as to whether there is actually a hierarchy of losses and whether some losses are more important than others in the lives of prisoners.
Hierarchy of losses and disenfranchised grief
In her paper, âA Catalogue of Lossesâ, Vaswani criticised that âmost studies of loss tend to focus predominantly on loss through deathâ (2015: 28). Indeed, grief experiences of prisoners arising from death are central in a wide number of papers which address specific death-related losses only. For example, Harner et al. stated that â[o]ur study aim was to describe the experience of losing a loved one through death while incarceratedâ (2011: 454). Ferszt examined âthe experience of three women who suffered the death of a significant personâ whilst in prison (Ferszt, 2002). Wilsonâs study focused on a variety of death experiences, such as
deaths from war and political unrest; death of childrenâŠ; suicideâŠ;⊠limited/restricted attendance at funeral rituals due to imprisonment, and unprompted discussions about sensing a presence of the deceased.
(2011: 13)
Finally, Taylor studied the chaplainsâ efforts to manage the bereavement experiences of prisoners arising from âfour uniquely difficult deaths: murder, suicide, death of the parental figure, death of a childâ (2012: 40). Arguably, these papers have implicitly defined the meaning of loss or, in other words, have implicitly set death, and more specifically death of relatives, as the primary focus.
The focus on death experiences does not necessarily reflect a lack of recognition of the existence of other social losses involved in the life stories of inmates. A number of papers refer to those losses. However, they still divert the focus to the death experiences singularly. For example, Olson and McEwen indicated that â[m]any prison inmates have experienced significant losses prior to as well as during their incarcerationâ and referred to the âloss of possessions, jobs, control, freedom, relationships, childhood, spirituality, and dreams and goalsâ (2004: 226). However, their paper did not address them any further, as the focus was on the experience of âfour grief counselling groupsâ and how their members dealt with the âreality of the deathsâ (Olson & McEwen, 2004: 226). Similarly, Wilson also recognised that emotions of loss âare not only associated with death but can be triggered [by] many other significant, non-death related losses⊠such as loss of stability through a dysfunctional family situation or being placed in careâ and so on (2010: 10). However, the grieving project in prison, which was the paperâs subject, was about death only (Wilson, 2010). The overwhelming majority of the studies place their focus on death, regardless of the recognition or not about the existence of social losses in the lives of prisoners.
The same pattern was also seen in the accounts of the interviewees of this qualitative small-scale research on bereavement care and criminal justice (see endnote 1), where bereavement experiences of prisoners arising from death-related losses of persons close to them were also central in the accounts of the practitioners-interviewees. For example, the stories of the bereavement counsellors (BC) were concerned with a prisoner whose âmum had died⊠and came to terms with his motherâs deathâ; âa prisoner who was responsible for the death of his partnerâ (BC 1); âsomebody who lost an eight-year-old brother, but he to all intents and purposes was the carer for this little brother as wellâ (BC 2); and âa grandparentâs deathâ (BC 2). BC 2 further indicated that death of a child is âone of the most difficult areas⊠it is indeed extremely difficult when youâre dealing with somebody whoâs lost a child and they themselves are in prison,â indicating (through a story) that âthe younger they are, the more helpless they feel.â Death was also central in the interview with the chaplain, who indicated that âas a chaplain, you can get as a reputation being the Angel of Death,â as the chaplain deals with âreceiving information of the death of a relativeâ and processing this to the prisoner. The BCs indicated the âchaotic livesâ of the bereaved prisoners, and agreed that their condition of being âleft abandoned when theyâre in prisonâ, or simply âbeing incarceratedâ, âin essence, it sort of mirrors bereavement.â Nevertheless, the âchaoticâ life histories of the prisoners were not seen as embodying losses, namely social losses. It was only in one instance, of a bereaved prisoner who was a former vicar, that BC 1 stressed that â[h]e was abandoned by the Church⊠and that was a huge loss,â therefore linking the concepts of loss and bereavement to social losses. Remarkably, the chaplain-interviewee indicated that
loss for me is not just about loss of⊠you know, bereavement through death, itâs loss through abuse, loss through a whole variety of issues⊠and people have really struggled because things have happened, especially if there have been breakdowns in the relationships and theyâve lost the contact with the father or the mother or whatever it is, you know. So I donât narrow it down to death.
Nevertheless, the chaplain still observed that
sometimes with loss the thing can be recouped, it can be in some way brought back, whereas with death, thatâs not gonna be a possibility⊠So, with loss I think you can ...