Chapter 1
The need for innovation when providing services for the difficult to engage
Alan Meaden and Andrew Fox
In contemporary mental health, recovery and social inclusion are key concepts that underpin the delivery of services (e.g. No Health Without Mental Health, Department of Health, 2011). However, complex mental health needs and engagement difficulties can act as a barrier to recovery and social inclusion (Meaden & Hacker, 2010). In this text we have drawn together descriptions of various psychosocial approaches that are currently being used with people who have complex mental health needs (such as those associated with diagnoses such as schizophrenia and other psychoses), but who can be difficult to engage in services. We describe psychosocial interventions as referring to a broad range of psychological treatments which aim to address the way in which psychological and social factors interact in the emergence and course of psychotic symptoms and experiences. We would also include the way in which individuals respond to biological factors in this description.
Early texts such as that by Birchwood and Tarrier (1992) led to a significant increase in the range of psychosocial interventions offered to people with psychosis. Indeed, relapse prevention, behavioural family therapy and, not least, Cognitive Behavioural Therapy (CBT), have all now been adopted as part of routine practice. However, not all individuals report benefit (Yung, 2012). Indeed there remains a group of people who are persistently hard to reach and resistant to these treatments. In this book we attempt to further the range of interventions offered by drawing on the work of a broad range of authors working in diverse settings. In many cases we have been fortunate to have worked alongside them and shared the emergence of their ideas and therapeutic endeavours.
It has also on a personal level been part of our on-going efforts to enable and support a group of service users all too often neglected in the rush to endorse NICE-compliant treatments (sometimes to the exclusion of other approaches) in their recovery. The approaches detailed in this book offer various ways through which people ā who may, at best, be ambivalent about their involvement in services ā can be supported to progress in their recovery. We believe these approaches can be labelled as āinnovativeā in that they represent novel modifications, adaptations and syntheses of existing psychosocial approaches tailored to meet the needs of a disengaged population of people with complex mental health difficulties. These innovations have been developed through clinical work in a variety of inpatient and community settings, including acute inpatient wards, assertive outreach teams and inpatient rehabilitation services. In this way, we believe that this text represents āpractice-based evidenceā (Green, 2008), acting both as a guide for intervention and as a catalyst for the development of research that evaluates the effectiveness of these approaches in practice. There is clear evidence across all chapters of a shared commitment to using innovative clinical practice to enhance recovery and social inclusion for those who are experiencing complex mental health difficulties. We would echo the sentiments that āyou need hope to copeā (Perkins, 2006: 112) and believe that this collection offers some direction and optimism to clinicians who wish to use psychosocial interventions to support those with the most complex mental health and behavioural needs.
References
Birchwood, M. & Tarrier, N. (1992). Innovations in the psychological management of schizophrenia: Assessment, treatment and services. Chichester, Sussex: John Wiley & Sons.
Department of Health (2011). No health without mental health: A cross-government mental health outcomes strategy for people of all ages. London: Department of Health.
Green, L. W. (2008). Making research relevant: If it is an evidence-based practice, whereās the practice-based evidence? Family Practice, 25(Suppl. 1), i20āi24.
Meaden, A. & Hacker, D. (2010). Problematic and risk behaviours in psychosis: A shared formulation approach. Hove, E. Sussex: Brunner-Routledge.
Perkins, R. (2006). First person: āYou need hope to copeā. In G. Roberts, S. Davenport, F. Holloway & T. Tattan (eds), Enabling recovery: The principles and practice of rehabilitation psychiatry (pp. 112ā124). London: Gaskell.
Yung, A. R. (2012). Early intervention in psychosis: Evidence gaps, criticism, and confusion. Australian and New Zealand Journal of Psychiatry, 46, 7ā9.
Part I
Innovations in engagement and brief therapies
Chapter 2
The Adapted Open Dialogue approach
Gert van Rensburg
Introduction
Open Dialogue (OD) is an approach to working with people experiencing complex mental health difficulties that in many ways departs from ātraditionalā Western psychiatric approaches. It involves a re-conceptualisation of the way mental health teams work with people with psychosis (and their families) and the roles of these people in treatment. Following a workshop facilitated by the originators of the approach, Jaakko Seikkula and Tom Andersen, this was considered for implementation within an inpatient rehabilitation setting. It was proposed that critical elements of the OD approach could enhance therapeutic work with people who are difficult to engage. The current chapter aims to provide a brief overview of the background to the development of the original ideas and theoretical constructs of OD, followed by a detailed description of how these have been applied in a low-secure environment within an inpatient rehabilitation service for people with complex mental health needs in the UK.
Theoretical background and development: Need Adapted Treatment
It is not possible to understand OD without reviewing the Need Adapted Treatment (NAT) orientation from which it developed. NAT originated from what Alanen (1997) describes as the āTurku Schizophrenia Projectā initiated in 1968 in Turku, Finland. Through both research and therapeutic interventions, the project set out to construct the best possible treatment for psychosis associated with schizophrenia. The project ran uninterrupted but with much development along the way through into the 1990s, by which stage the approach was known as Need Adapted Treatment.
Alanen describes the original developmental goal as follows: āTo develop the treatment of Schizophrenia-group patients with an integrated but psychotherapeutically oriented approachā (Alanen, 1997: 141). The focus was on developing and fostering a basic psychotherapeutic attitude in the approach employed by staff as well as developing the hospital wards to become psychotherapeutic communities. This included the use of family therapy and activities, a focus on the development of individual therapeutic relationships and pharmacotherapy as treatment supportive of the psychological therapy. An emphasis on team work was supported by supervision and training to equip all staff members to become involved in the therapeutic work. There was a commitment to the systematic evaluation of the approach to monitor the treatment needs of the patients and to ascertain how the development of the approach affected treatment outcomes.
Concept and principles
Alanen (1997) acknowledges that the term NAT has not gone unchallenged. A specific query relates to the concept of āneedā. Alanen argues that needs are not to be defined in terms of philosophical or social psychological constructs but rather as a clinical concept that describes what is required for a specific individual at a given point of treatment. The term NAT therefore reflects the heterogeneity and uniqueness of the therapeutic needs of each person requiring treatment.
NAT involves a hermeneutic approach with the aim being to arrive at a psychological understanding of the difficulties as they present in the context of the individual and their environment. This includes not only difficulties caused by symptoms but also the significance the symptoms have for the individual. This psychological understanding then becomes the bedrock guiding all therapeutic interventions. Aaltonen and RƤkkƶlƤinen (1994) propose the concept of āshared mental representationā to be employed to steer the treatment process. This is similar to the concept of āshared formulationā (Meaden & Hacker, 2010), with the same intended aim of integrated treatment guided by an evidence-based psychological understanding of the difficulties.
NAT emphasises the importance of sharing the psychological understanding amongst the treatment team, the service user and members of their immediate social network. Further emphasis is placed on treatment as a process rather than an episode or event where needs are real and changing (hence āneed adaptedā). Alanen (1997) also argues that not only do service users often not receive the treatment they need, but many also receive treatment they do not need, such as unduly long hospital admissions and excessive neuroleptic treatment. Thus NAT aims to provide the required treatment as determined by the psychological understanding and to prevent unnecessary interventions (Alanen, 1997).
Alanen summarised NAT in terms of four general principles (Alanen et al., 1991; Alanen, 1997):
⢠All therapeutic activities are planned and carried out flexibly and individually as each case demands.
⢠Assessment and treatment are underpinned and guided by a āpsychotherapeutic attitudeā. This requires clinicians to develop an understanding of past and present events for the service user as well as the people in their social network and how these can be utilised in the overall approach. It further requires observation of the clinicianās own emotional responses when in dialogue with the service users.
⢠Different therapeutic approaches should supplement each other rather than constitute an āeither/orā approach.
⢠Treatment should be characterised by a continuous process rather than a series of interventions.
The development and implementation of the Open Dialogue approach
Jaakko Seikkula and his colleagues in Western Lapland, Finland, implemented the NAT in the city of Keropodus. Whilst adhering to the general principles of NAT, they developed a further innovation they termed Open Dialogue (OD; Seikkula et al., 2001). The basic premise of OD is to arrange treatment (psychological and other) for all patients within their own social support system. This required the development of a family-centred and network-centred psychiatric treatment model. The model is underpinned by a number of ideas that have emerged developmentally and through research since the interventionās inception in the 1980s. Seikkula et al. (2006) summarise this as:
⢠An immediate (within 24 hours) response to the presentation;
⢠The participation from the outset of the patientās family and other key members of their social network;
⢠Inpatient treatment is postponed whenever feasible. This is achieved by arranging home visits (often daily) in an attempt to limit admissions to people who cannot be stabilised/contained outside hospital;
⢠The use of what is termed Treatment Meetings wherein a dialogical approach is applied.
All psychiatric presentations irrespective of the diagnosis are dealt with using the same intervention principles. Where a person first presents at hospital in crisis the crisis clinic in the hospital arranges an admission meeting, either before the decision to admit for voluntary admissions, or during the first day of inpatient treatment for compulsory admissions.
At the first meeting a case-specific team is nominated. This multi-agency multi-professional team is tailor made for each case. This team takes charge of the entire treatment sequence, regardless of site of delivery (at home or in hospital) or duration of treatment. Flexibility is achieved by the team consisting of both inpatient and outpatient staff and the same team continuing the work throughout.
Outcomes of the OD approach are promising and have remained consistently so in a number of studies spanning more than a decade. Seikkula et al. (2011) found that among a population of people experiencing their first episode of psychosis, more than 80 per cent had no residual psychotic symptoms up to five years following treatment using OD. A similar percentage of individuals had returned to work or resumed studies while less than 30 per cent were maintained on neuroleptics ā suggesting that the approach can minimise the need for medication (Seikkula et al., 2011). The duration of untreated psychosis had declined and a significant amount of individuals had participated in the Treatment Meetings, which may have played a role in preventing first episodes from developing into long-term illness and disability (Seikkula et al., 2011).
Aims, stages, strategies and techniques
The main forum for therapeutic interaction is a āTreatment Meetingā (Seikkula et al., 2006). This was adopted from NAT where the value of joint meetings was noted. Here the people affected by the problem ā the patient, their family, members of their social network and other authorities ā gather to discuss all the issues associated with the reported problem. All interventions and decisions ā including assessment, formulation and care planning ā are made with everyone present. There are no other treatment planning discussions among the staff. The principal aim of the conversation in the Treatment Meeting is to construct a new language for the difficult experiences of the patient and those nearest him or her, which are connected with (affected by) the disturbing (often psychotic) behaviour.
Psychotic speech is viewed as a way of handling difficult and often terrifying experiences in the life of the patient. It is postulated that due to the terrifying nature of such experiences people find it often difficult to communicate in a manner that others understand other than through the language of the hallucination or delusion. The person is robbed of the ability to formulate a rational spoken narrative, and it could be said that these experiences ādo not yet have wordsā (Seikkula et al., 2001). Holma and Aaltonen (1997) defined this as the pre-narrative quality of psychotic experience.
A large part of the therapeutic task is to construct new meanings to describe the psychotic experiences. In the safety of the Treatment Meetings, through dialogue, shared understanding and construction of ...