PART I
Approaching Digital Health Communication
Chapter 1
Creating and Capturing Patient Value
LETIZIA AFFINITO
Developing an effective patient-centered digital strategy is one of the biggest challenges in todayâs evolving healthcare industry. Starting off on the right foot, for health communication managers, either from healthcare equipment and services organizations or pharmaceuticals, biotechnology and related life sciences companies, requires having a clear understanding of some basic concepts which will help them go through the Digital Health Communication Strategy Process to create and capture patient value.
In this chapter we introduce the basic concepts of digital health communication. After discussing the leading trends and forces affecting health communication in this era of social media and patient engagement, we start by defining digital health communication and then discuss the key steps in the digital communication processâfrom monitoring patient discussions on the web (primarily social media) to understanding patient needs, designing patient-driven health digital strategies and integrated communication programs, building patient relationships, and, finally, creating patient value.
Weâll begin our journey with a leading case history on digital communication in action at Cleveland Clinic (CC), the first major academic medical center to make patient experience a strategic goal, the first to appoint a Chief Experience Officer, and one of the first academic medical centers to establish an Office of Patient Experience. The secret to CCâs success is its commitment to the âPatients Firstâ guiding principle. CC has a profound passion for creating patient value and relationships through a patient-centered approach. In return, patients reward CC with advocacy, marketing insights, and loyalty.
Cleveland Clinic: Passionate about Creating Patient Value and Relationships
In thinking about patient-centered healthcare, you cannot avoid thinking first of CC. As a groundbreaker of the patient experience as a strategic goal, it was established in 1921 for the purpose of providing patient care, research, and medical education.1
In 2004, CC designed and implemented the âPatient Firstâ program to focus more deeply on the well-being of its patients. Making the stay at CC âa nice experienceâ became a central goal. This included the introduction of the new title and role of Chief Experience Officer. Among other reasons, the move stemmed from understanding that an attention to emotional well-being, along with education, compliance, and patient engagement, actually contributed to the success of the entire cycle. The mindset of service opened CC employees to identify issues such as patient anxiety, dissatisfaction with food, missed appointments, and long waits on the phoneâall of which could affect the outcome of patient conditions. Eliminating these lapses represented gains in patient satisfaction as well as increased efficiency.
One key to the success of the âPatient Firstâ program is CCâs effort to improve the online experience and engage patients through its website. The biggest part of this effort is the eClevelandClinic services, which includes MyChart, an EMR. Through the medical record, the patient can receive all their test results and information they need about their recent visit with the physician. Patients not yet signed up for MyChart can go to the clevelandclinic.org website and smoothly make online appointment requests and ask questions.
To create an engaging online experience, CC invested the time of employees who are knowledgeable about the Clinicâs brand and its communication key messages. They started by looking at other industriesâ best benchmarks and at what other healthcare players were doing. Next, they did their own research before setting up a social media council involving people across the health systemâfrom regional hospitals, from legal to HR, from clinical to marketing and communication (cross-functional team). As a result, they set up a social
One key to the success of the âPatient Firstâ program is CCâs effort to improve the online experience and engage patients through its website.
media policy to govern employeesâ behavior in interacting with social media and built a team dedicated to interacting with followers on Facebook and Twitter to make sure patients get quick responses to questions and comments on the two channels. âWe track awareness on a quarterly basis,â says CC Chief Communications and Marketing Officer, Paul G. Matsen. According to the results of its internal surveys, social media now represents almost 5 percent of awareness of CC.
In one of his most recent interviews,2 Matsen said:
About six years ago we were at 15-million visits to clevelandclinic.org. This year weâll finish above 90-million. And one of the things that I stress is that mobile has been transforming the Owned digital media space in the past three to five years, and this is going to continue ⌠In August, 69 percent of the visits to our website were made on a smartphone or tablet device. Mobile, combined with social media have really been driving tremendous growth on our website. The growth of mobile is highly significant. So having a great mobile user experience is vital, build that into your planning, and think about responsive design. Even when youâre thinking about your search campaign, consider if they work on mobile devices. A lot of that is driven by the success weâve had in social media. Many people that access their Facebook and other social media accounts do so on their mobile devices, multiple times each day. If youâre creating great content, you can pull them through to your website. So, if you havenât designed for mobile from the start you are missing out on a huge part of audience.
Successful organizations providing products and services in the healthcare industry have one thing in common: just like CC, they are extremely patient-centered and greatly committed to communication both internally and externally.
These companies share a commitment to understanding and satisfying patient needs in well-defined target markets. They encourage everyone in the organization to help develop lasting patient relationships based on creating value.
Successful organizations providing products and services in the healthcare industry have one thing in common: just like CC, they are extremely patient-centered and greatly committed to communication both internally and externally.
Todayâs patients are making health decisions more carefully and reassessing their relationship with brands, being it a drug, healthcare provider, or even a doctor. Itâs more important than ever to build strong patient relationships based on real and enduring value.
This is evident to the pharmaceutical industryânearly half of pharmaceutical manufacturers are now actively using social media to engage with patients on healthcare-related topics, according to a 2014 report released by the IMS Institute for Healthcare Informatics.3
The Rise of The Empowered Patient
Sarah Thornton, a user of the UKâs National Health Service (NHS), in a British Medical Journal opinion piece,4 criticized the health service for being strong on rhetoric about âpatient led careâ but weak on implementation. âDespite the strong rhetoric ⌠there has been no consistent strategy for involving patients,â she wrote. âThe approach to enabling patients and the general public to have more say about how services are planned and developed has been piecemeal, and the bodies set up to facilitate patient involvement have been transient.â
A new healthcare consumer is gaining ground who, having lost trust in many elements of the healthcare system, is becoming more and more prone to taking charge of his/her own treatments.
Meanwhile, a new healthcare consumer is gaining ground, the so-called âempowered patient,â a patient who, having lost trust in many elements of the healthcare system (that is, the regulators, healthcare professionals (HCPs), and pharma and biomedical companies), is becoming more and more prone to taking charge of his/her own treatments. In addition, as out-of-pocket expenses rise, patients expect to be properly and independently informed about possible treatment solutions or healthcare services.
At the same time, having faster and more direct access to information over the Internet offers consumers the chance to proactively learn more about their own or their loved onesâ diseases and/or disorders, treatment alternative solutions, and to even share their experiences and confront medical issues with other patients throughout the globe.
As a consequence, patients play a crucial role in todayâs healthcare, and that trend appears poised to escalate and drive further changes in the industry.
Nevertheless, most healthcare organizations publicizing âpatient-centricityâ are, currently, going no further than providing patients with access to information and offering them tools to complain.
To make patient empowerment a reality, organizations working in the healthcare industry need to develop a comprehensive systematic approach to communicating with patients. Such a patient-centered Digital Health Communication Strategy must be developed and executed to meet the needs of patients and caregivers so that they and their loved ones can lead healthy, productive lives.
A new healthcare consumer is gaining ground who, having lost trust in many elements of the healthcare system, is becoming more and more prone to taking charge of his/her own treatments.
In order to have a better understanding of âwhyâ and âhowâ patient-centeredness is important, it is necessary to understand the psychology of motivation in human activities. After years of exploring motivational issues among students and employees, social psychologists Edward Deci and Richard Ryan (2002)5 observed that most people are driven by a need to seek self-determination in thought and action in order to influence the outcomes that affect their everyday lives. When the environment reinforces self-determination, individuals are effective and thrive.
Deci and Ryan (2000)6 recognized three universal needs that seem to influence the growing of self-determined behavior: the need for autonomy, competence, and psychological relatedness.
The need for autonomy is the necessity to perceive actions as coming from internal motivations, not necessarily from external sources. The need for competency is the will we all have to learn from the environment and acquire and enhance essential life skills. The need for relatedness is the social need to acquire a sense of respect and a strong need to create and maintain social relationships with other individuals. This is especially true when it comes to healthcare.
âSupporting these universal needs lies at the heart of creating an environment that will lead to personal empowerment.â
âSupporting these universal needs,â Deci and Ryan argued, âlies at the heart of creating an environment that will lead to personal empowerment.â
Through patient-centered digital communication, organizations can develop long-term relationships with patients and imbue in them a sense of loyalty. Technology and new media are key elements in this process, but must be used in a way that is transparent and that reinforces the organizationâs core commitment to providing patients with responsive and continuous support.
âSupporting these universal needs lies at the heart of creating an environment that will lead to personal empowerment.â
Defining Digital Health Communication
The advent of the Internet and particularly Social Media has added a new dimension to the discipline of marketing and health communication, which has traditionally relied on TV, print, radio, outdoor, and word-of-mouth (WOM). When we talk about âdigitalâ health communication, we are referring to communication delivered via any of the following âchannels:â
⢠basic Internet websites;
⢠e-mail;
⢠social media (Facebook, Twitter, Tumblr, Instagram, and so on);
⢠online video (for example, YouTube);
⢠mobile, including SMS (text messaging) and apps;
⢠any other digital channel that may be developed in the future (for example, the Apple Watch).
While the use of social media platforms in healthcare is evolving, mobile apps are becoming more prevalent and, if well developed and managed, provide easy and efficient ways to help patients manage their health goals and research treatment options. Nevertheless, to date, most efforts in apps development have been in the overall wellness category with diet and exercise apps accounting for the majority available. According to the IMS Institute for Healthcare Informatics report: âAn assessment finds that healthcare apps available today have both limited and simple functionalityâthe majority does little more than provide information.â7
Health and technology are converging to become ubiquitous ...