Storying Beyond Social Difficulties with Neuro-Diverse Adolescents
eBook - ePub

Storying Beyond Social Difficulties with Neuro-Diverse Adolescents

The "Imagine, Create, Belong" Social Development Programme

  1. 150 pages
  2. English
  3. ePUB (mobile friendly)
  4. Available on iOS & Android
eBook - ePub

Storying Beyond Social Difficulties with Neuro-Diverse Adolescents

The "Imagine, Create, Belong" Social Development Programme

About this book

Traditional approaches to social skill development may often be ineffective for those in most need of them – those who are neuro-diverse (for example, on the Autism Spectrum, with dyspraxia, or with Attention Deficit Hyperactivity Disorder), those who have experienced trauma, those with an intellectual disability, and those who present with Complex Communication Needs. This may be due to difficulties with language, attention, and memory.

Storying Beyond Social Difficulties with Neuro-Diverse Adolescents is a manual that outlines an eight-session programme, called "Imagine, Create, Belong", that involves a range of activities designed to develop theory of mind, flexible thinking, empathy, and narrative ability. The sessions can be run across 8 or 16 weeks and contain sections suitable for those in mainstream schools, with adaptations to support adolescents with additional needs (including moderate intellectual disability and Complex Communication Needs). The manual does this via a range of age-appropriate play-based activities within a group setting focused on making a movie. It includes non-verbal and verbal approaches to social development and is an implicit approach to social skills.

The programme is suitable for young people aged 11 years to 15 years with social difficulties. It includes content that may suit adolescents from both individualist and collectivist cultures. The manual provides step-by-step guidance for practitioners to run the "Imagine, Create, Belong" social skills programme with participants with a range of intellectual abilities who have been identified by parents, teachers, or other professionals as having social difficulties.

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Information

Publisher
Routledge
Year
2019
eBook ISBN
9781000740363

Chapter 1

Adolescence and social interaction

The purpose and background of “Imagine, Create, Belong”

The purpose of the “Imagine, Create, Belong” programme is to facilitate an increased capacity of the young people aged 11–15 years (early to mid-adolescence) to understand and respond appropriately to social situations. Because of this increased social understanding, the young person’s world is more cohesive, with an increased shift to a more positive sense of self. “Imagine, Create, Belong” aims to support adolescents who are neuro-diverse. This includes young people with Attention Deficit Hyperactivity Disorder (ADHD), Post-Traumatic Stress Disorder (PTSD), Autism Spectrum Disorder (ASD), and learning and language problems who have social difficulties. “Imagine, Create, Belong” is underpinned by the theoretical foundations of cognitive developmental play theories – particularly pretend play development – and Vygotsky’s social constructionist view of development, as well as person-centred therapy based on the work of Carl Rogers and applied to younger people by Virginia Axline.
This approach came about through a serendipitous morning coffee chat between Sophie Goldingay and Karen Stagnitti at their work base university campus at Deakin University. Sophie had completed a doctorate working with young prisoners in New Zealand. She had noticed that often they seemed to have misunderstood the social circumstances of why they were now in prison. Some appeared to have difficulty imagining the impact of their actions on themselves or other people. This was very different to not caring about what happened – it was clear many cared very deeply. Rather, it was more that some could not imagine it until it was pointed out or they were having a victim’s impact statement read out at a criminal trial. Karen had been working in the area of pretend play and had developed several play assessments and a therapy approach for children with developmental issues called “Learn to Play Therapy”. Together they pieced together the hypothesis that some of the young people Sophie had worked with in her social work practice and during her doctoral studies possibly had not developed complex pretend play as children and were struggling with concepts of theory of mind, and lacked the ability to anticipate the consequences of their actions and think in sequential ways. Sophie then brought together a research team to create and study an approach based on principles of pretend play and narrative development, developed by Karen, which was suitable for neuro-diverse young people. Belinda Dean and Narelle Robertson were part of the research team and were involved in two studies trialling an eight-session therapeutic intervention that became “Imagine, Create, Belong”. Donna Davidson and Eleanor Francis became aware of this approach and could see the possibilities of this programme for young people who attended special school because of their challenging social behaviours, intellectual capacities below an Intelligence Quota (IQ) of 70, and neuro-diversity. Donna and Eleanor have used “Imagine, Create, Belong” with this group of young people and found it to be associated with positive changes in a reduction of challenging behaviours and more social awareness. The adaptations of “Imagine, Create, Belong” made by Donna and Eleanor are in this manual.
This chapter outlines the theoretical underpinnings of “Imagine, Create, Belong”. Chapter 2 presents how to use this manual and the specific techniques for facilitators found to be effective within the programme and tied to the theoretical underpinnings. The remaining Chapters 3– 10 are practical and outline each of the eight sessions of “Imagine, Create, Belong”, with a chapter for each session. Chapter 11 provides ideas for further developing participants’ involvement in more independent ways that do not require facilitators. Within each of these chapters, the adaptations of “Imagine, Create, Belong” for that session for adolescents with more challenging neuro-diversity are presented, after an explanation of the format and activities used within the research studies with adolescents from mainstream high schools who were neuro-diverse. For the adaptations for each session, two sessions are provided by Donna and Eleanor because they found, when working through the programme with adolescents with challenging neuro-diversity, greater repetition and explicit teaching of foundational concepts was required.

The importance of social belonging for young people

Adolescence is a period beginning around 12 years of age and continuing into the early 20s (Yasenik & Gardner, 2017). In Western culture, early to mid-adolescence is a time of increased social interaction outside of family, with interpersonal relationships becoming more important (Harter, 2012; Nippold et al., 2014) as the young person strives to separate themselves from parents and differentiate themselves as unique (Harter, 2012). This view of adolescence comes from Western derived stage theories posited by Anna Freud and Erik Erikson in the 1950s and fits Western understandings that the autonomous individual is the basic building block of society (Drewery & Bird, 2004) where the development of personal autonomy and individualism is important. Young people spend more time with peers as opposed to adult family members, navigating social relationships and telling stories about themselves (autobiographical narratives) to achieve a sense of belonging and emotional support (Nippold et al., 2014).
Experiences of young people at this age in cultures not derived from an individualist Western tradition are likely to differ from those cited above, however. For example, collectivist cultures may prioritise deepening connections and relatedness with kin during adolescence as opposed to separation from them. In New Zealand, Mason Durie (1998) notes for Maori that identity development is a collectivist process to deepen family connections across the generations, both past and present. In Australia, young people of Aboriginal and Torres Strait Island nations are also likely to experience the process of healthy growing to maturity differently. Identity for Aboriginal people comes with oral sharing of the history, stories of their bloodline that connect them to their traditional land, beliefs and values. Thus, identity, connection to culture, and community become of interest at this age but can also be challenging (Eccles 2019, personal communication). A research project in Melbourne, based on a partnership with a local Aboriginal Community Controlled organisation which included four senior Aboriginal women as project advisors (Priest, Mackean, Davis, Briggs, & Waters, 2012), found that strong culture was the central core of Aboriginal child health, well-being, and identity development. From interviews with Aboriginal grandparents, parents, aunties, or uncles of Aboriginal children, the researchers found this concept included “passing of cultural knowledge from one generation to the next and modeling of community and gender-related roles” (Priest et al., 2012, p. 184). Thus, rather than aiming for separation and differentiation from parents or parental figures, the process of healthy identity development for Koori (e.g. those who are from Victoria and New South Wales, Australia) adolescents involves spending more time with elders and building connections through participation in community events and ceremony which involves the whole family. A deepening of spiritual connection to Country, with its associated custodian responsibilities, is also an essential part of identity development for Aboriginal and Torres Strait Islander adolescents. Development of storytelling and narrative ability is key to identity development in adolescents irrespective of cultural background, however.
Physically, adolescence is also a period of major brain re-organisation and pruning (Siegel & Bryson, 2012; Siegel, 2012, 2013), with the highest volume of grey matter in the brain occurring during early adolescence (Yasenik & Gardner, 2017, p. 74). The brain’s capacity to process emotions is “fully online” but with control of emotional impulses still maturing (Yasenik & Gardner, 2017, p. 74). Prior to adolescence, the autobiographical memory of a 10-year-old young person is in their control as they become the owner of their own story, with the ability to evaluate what others think of them while becoming more concerned about what others think of them. In this pre-adolescent time, older children use social comparisons for assessments of their personal competence, alongside being able to describe themselves by characteristics (Harter, 2012). For some young people, adolescence sees a dramatic increase in social awareness and self-consciousness of others’ opinions (particularly peers) of who they are (Harter, 2012). As noted for both Western and non-Western adolescents, significant adults are important during the period of mid-adolescence, as they support the young person’s autobiographical account of past, present, and future.
During early adolescence, young people are changing in their language and cognitive abilities. They are moving from concrete to formal operational thought, and this makes it possible for them “to engage in hypothetical-deductive reasoning, the ability to think logically and abstractly about complex issues” (Nippold et al., 2014, p. 878). Young adolescents may begin to show interest in discussion of social, political, or religious topics and, as they are very aware of hypocrisy in others, may do so from an idealistic perspective (Harter, 2012; Nippold et al., 2014). Changes in their cognitive capacities are shown in an increasing ability to take a socially oriented perspective, that is, what is good for society, more than a perspective primarily centred on the self (Nippold et al., 2014). They use longer sentences to express themselves with narratives that show more complex language structures (Nippold et al., 2014). Oral language competence, including narrative competence, underpins literacy achievements and contributes to academic achievement (Nicolopoulou, Barbosa de Sá, Ilgaz, & Brockmeyer, 2010; Snow & Powell, 2011).

Neuro-diversity and social difficulties

Adolescence, then, is a time of major change for the young person – in brain development, sense of self, and cognitive and language capacities. For some adolescents who are neuro-diverse and who struggle with social situations, their experience may be more of loneliness and rejection which, in turn, increases anxiety levels and compounds their social difficulties (Parker & Asher, 1987). Young people who are neuro-diverse may have greater difficulty coping with complex social situations in adolescence and may find themselves isolated, which contributes to poorer well-being (Parker & Asher, 1987). Social difficulties have been related to lower oral language and narrative abilities. Snow and Powell (2011) found that young offenders had lower oral language ability than expected for age (which supports Sophie Goldingay’s observations during her practice experience and doctoral studies). Oral language also includes telling stories, and an ability to tell a narrative coherently has been reported as being difficult for children with autism (Stirling, Douglas, Leekam, & Carey, 2014). For young people aged 10–12 years with ASD and co-morbid ADHD symptoms, executive function difficulties were associated with ADHD symptoms, with associations between executive function and theory of mind impairments also providing insight into the functioning of these young people (Lukito et al., 2017). “Imagine, Create, Belong” was developed with these young people as the focus of this programme.

A different approach for neuro-diverse adolescents

Approaches such as Cognitive Behavioural Therapy through to social skill development and emotional insight may be ineffective for neuro-diverse young people due to problems with attention, language, and memory (Goldingay & Stagnitti, 2014). Approaches such as Cognitive Behavioural Therapy require insight and cognitive capacities with the linking of feelings and behaviours that many young neuro-diverse people struggle with (Attwood & Scarpa, 2013). In adolescence, many young people who are neuro-diverse have experienced developmental difficulties as they have grown up, such as: reduced ability to read social situations; lack of understanding of social contexts; poorer ability to negotiate with peers; lack of narrative ability, including difficulty extending a story, identifying and resolving problems in the story, poorer understanding of characters’ emotions, actions, and what they would say; and following conversations (related to logical sequential thought processes). These difficulties are also present in children with poor pretend play ability (Stagnitti, 2016a; Stagnitti & Unsworth, 2000). Goldingay et al. (2015) found that neuro-diverse young people show deficits in pretend play ability, particularly the link between creating a story (narrative) and play. Studies have found that embodiment of the story in role play (“embodiment”, also being called “embodied cognition”, that is, the whole body is moved to act out the story) is more effective for recall of the story than just using a puppet, play props, or pictures (Lillard et al., 2013). This shows that the deeper the physical and emotional engagement in the play, the more likely the child is to engage in a cohesive narrative, thus developing this ability for use later in life. In addition, Gray (2011) found a correlation between increased play in childhood and decreased anxiety and depression in adolescence.
An age-appropriate play-based approach, then, offers an alternative to working with adolescents who are neuro-diverse and who experience difficulties in social settings. Many young people with developmental difficulties have not developed foundational skills through early play behaviour and during early play behaviour were often not involved in group play to a complex level of playing a scenario over several days or weeks with peers. Hence, while some young people who are neuro-diverse with ASD can engage in pretend play (Chaudry & Dissanayake, 2016), the complexity and length of playing may not match that of their peers. Thus, skills, such as awareness of the thoughts and mental states of others (theory of mind) and ability to think in sequential ways for developing and understanding a cohesive narrative that evolves in the play, may not be developed.

Theoretical underpinnings of “Imagine, Create, Belong”

Several theoretical approaches influenced the development and design of “Imagine, Create, Belong”. This section explains these approaches, starting with early pretend play development and links to social competence, narrative, theory of mind, and repres...

Table of contents

  1. Cover
  2. Endorsement
  3. Half Title
  4. Title Page
  5. Copyright Page
  6. Dedication
  7. Contents
  8. List of figures and tables
  9. Foreword
  10. Acknowledgements
  11. Chapter 1 Adolescence and social interaction
  12. Chapter 2 How to use this manual
  13. Chapter 3 Session 1: Setting the scene
  14. Chapter 4 Session 2: Participants’ life story and the life story of the character
  15. Chapter 5 Session 3: Narrative and identity: How does your character act and feel?
  16. Chapter 6 Session 4: Context, plot structure, props, and scenes
  17. Chapter 7 Session 5: Beginning to identify problems to solve in the story
  18. Chapter 8 Session 6: How will the characters solve the identified problems and what are the props for the movie?
  19. Chapter 9 Session 7: Bringing it all together
  20. Chapter 10 Session 8: The grand finale
  21. Chapter 11 Epilogue
  22. Appendix 1: Blank storyboard sheets
  23. Appendix 2: Strength cards
  24. Appendix 3: Visual schedule
  25. Appendix 4: Visual supports
  26. Appendix 5: Genogram, ecomap, and Tree of Life
  27. Appendix 6: Character cards or choice cards
  28. Appendix 7: Goal and problem cards
  29. Index

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Yes, you can access Storying Beyond Social Difficulties with Neuro-Diverse Adolescents by Sophie Goldingay,Karen Stagnitti,Belinda Dean,Narelle Robertson,Donna Davidson,Eleanor Francis in PDF and/or ePUB format, as well as other popular books in Psychology & Education General. We have over 1.5 million books available in our catalogue for you to explore.