CHAPTER 1
Asperger syndrome An introduction
Who was Asperger?
Hans Asperger (1906â1980) lived and worked in Vienna. He qualified as a doctor and specialised in paediatrics. His work brought him into contact with a number of boys who found it difficult to âfit inâ socially. In addition to their poor social interaction skills, the boys had difficulties with the social use of language, together with a limited ability to use and understand gesture and facial expression. Also evident were repetitive, stereotypical behaviours, often with âabnormal fixationsâ on certain objects.
Having noted the similarities in the behaviour of a number of these boys, Asperger (1944) wrote and presented his paper âAutistic psychopathies in childhoodâ. He recognised how severely the boysâ difficulties affected their everyday lives, commenting, âthey made their parentsâ lives miserable and drove their teachers to despairâ. He was also aware of the boysâ many positive features â they often had a high level of independent thinking, together with a capacity for special achievements â but he didnât underestimate the impact of their individuality on others with whom they came into contact, and he noted their vulnerability to teasing and bullying.
Aspergerâs paper was written in German towards the end of World War II, and for this reason reached only a limited readership. It only became widely accessible in the early 1980s when it was first translated into English and referred to by Lorna Wing in her own research into autism and related conditions. It was felt that the term âAutistic psychopathyâ sounded too negative, and âAsperger syndromeâ was suggested as a more acceptable alternative.
Autism and Asperger syndrome
At the same time as Asperger was doing his research in Vienna, the child psychiatrist Leo Kanner was working in Boston, USA. He saw a similar cluster of behaviours in a number of children whom he went on to describe as âautisticâ â using the same descriptor which Asperger had used for his research group. Both Kanner and Asperger had referred to the work of Bleuler (1911) when choosing the word âautismâ. However, Bleuler had used the term to describe people who had withdrawn from participation in the social world. Kanner stressed that the children he was describing had never been participants in that social world, whilst Asperger felt that the coining of the word âautismâ was âone of the great linguistic and conceptual creations in medical nomenclatureâ.
For Kanner, âearly childhood autismâ, on which he wrote his (1943) paper âAutistic disturbance of affective contactâ, had a number of defining features, including:
a profound autistic withdrawal;
an obsessive desire for the preservation of sameness;
an intelligent and pensive expression;
mutism, or language without real communicative intent;
over-sensitivity to stimuli;
a skilful relationship to objects.
Later researchers, particularly Lorna Wing (1981b and 1991), compared Aspergerâs writings to Kannerâs early papers and noted significant similarities between the children being described. The key difference was that the children described by Asperger had developed grammatical speech in infancy â although the speech they had was not used for the purpose of interpersonal communication.
The core difficulties in autism and Asperger syndrome are shared. Asperger syndrome involves a more subtle presentation of difficulties. This is not to say that it is a mild form of autism â as one parent said, âMy child has mild nothingâ. Asperger syndrome affects every aspect of a childâs life and can cause great upset for the family.
A commonly held view is that Asperger syndrome should be regarded as a subcategory of autism â part of the wider spectrum, but with sufficient distinct features to warrant a separate label. This view is useful for educational purposes as it is generally accepted that intervention and treatment approaches for children anywhere within the autism spectrum will share the same foundation.
The term âAsperger syndromeâ is useful in explaining to parents and teachers the root of the many problems they encounter with a child who is intellectually able, yet experiences significant social difficulties.
The triad of impairments in autism
While Aspergerâs paper lay undiscovered, Kannerâs observations on the nature of autism were the subject of much discussion, debate and further research. Lorna Wing and Judith Gould (1979) carried out an extensive epidemiological study in the London borough of Camberwell. They concluded that the difficulties characteristic of autism could be described as a âTriad of Impairmentsâ.
They emphasised the fundamentally social nature of the three linked areas of difficulty:
impairment of social interaction;
impairment of social communication;
impairment of social imagination, flexible thinking and imaginative play.
Wing and Gould noted that there were many children who did not exactly fit Kannerâs description of âearly childhood autismâ, but who, nevertheless, had significant difficulties within the areas of the triad. This led Wing (1981a) to use the term âAutistic continuumâ and later (Wing 1996) âthe Autistic spectrumâ, allowing for a broader definition of autism based on the triad.
Many individuals with Asperger syndrome experience sensory processing difficulties which impact on their learning, behaviour and everyday functioning. It is not clear that sensory processing problems are central to the condition; however, it is considered that sensory issues can give rise to difficulties and need to be taken into account.
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