INTRODUCTION
Psychosocial interventions (e.g. behavioural family therapy, relapse prevention, psychoeducation and cognitive-behaviour therapy) for psychosis have received increasing attention and support for adoption into routine practice in recent years. Cognitive-behaviour therapy (CBT) for psychosis, for example, is now part of standard evidence-based practice, both in research and clinical arenas and latterly in government guidelines in the United Kingdom (National Institute for Clinical Excellence, 2002; National Institute for Health and Clinical Excellence, 2009). The focus of these interventions has often been on the reduction of symptoms and distress or the prevention of psychotic relapse. A large number of randomised controlled trials have, however, failed to show consistent evidence of sustained clinical outcomes (Jones et al., 2002; Wykes et al., 2007; Lynch et al., 2010). The reality is that many peopleās psychotic symptoms and associated beliefs remain treatment resistant even to CBT and they continue to be cared for in long-term settings, by Multidisciplinary Teams (MDTs) where the emphasis is often on minimising risk. Perhaps surprisingly, much less attention has typically been paid to the multidisciplinary treatment and management of these clients who exhibit problematic or risk behaviours. This is in spite of the fact that behaviours such as aggression are a common issue in psychiatric inpatient treatment (Daffern et al., 2004, 2007) and in the community (Swanson et al., 1990; Monahan et al., 2001). Individuals with psychotic disorders such as schizophrenia are also at greater risk of suicide (Pompili et al., 2007) and self-neglect (ReThink, 2004). Furthermore, such behaviours may severely limit the individualās independence and freedom, significantly reducing their opportunities for community living and decreasing their quality of life. In this book we outline an innovative approach to the assessment and management of problematic and risk behaviours in psychosis. We term this the Shared Assessment, Formulation and Education (SAFE) approach. Our primary focus is on achieving integrated MDT working, aimed at eliciting changes in the clientās problematic or risk behaviours, whilst concurrently promoting a reduction in distress. It is a collaborative process that values all perspectives and serves to normalise problematic behaviours, making them understandable through the use of shared formulation processes. SAFE aims to also increase staff1 and carer empathy and promote shared effective care for managing such behaviours. Ultimately, our goal is to maximise the individualās independence by reducing barriers to living an ordinary life that problematic and risk behaviours can create and thereby enabling opportunities for recovery.
THE NATURE OF THE PROBLEM: DEFINITIONS AND CLASSIFICATION
A key source of empirical literature regarding what we have termed āproblematic behaviourā is to be found in the literature on challenging behaviour, based on research conducted in the field of intellectual or learning disability. Emersonās (1995, as cited in Emerson, 2001, p. 3) definition of challenging behaviour is now widely accepted in this field and is one we have adopted to guide our development of SAFE: āculturally abnormal behaviour(s) of such an intensity, frequency or duration that the physical safety of the person or others is likely to be placed in serious jeopardy, or behaviour which is likely to seriously limit use of, or result in the person being denied access to, ordinary community facilitiesā. Challenging behaviour is therefore inherently defined by its impact. The definition encompasses both risk behaviours that are life threatening or likely to cause significant physical harm to self or others, and those that may cause distress or discomfort to self and others. The scope of this definition also extends to behaviours that result in the social exclusion of the individual concerned by either preventing the use of community facilities or alienating the person from potential social supports or relationships. Whilst the social, physical and psychological impact is a crucial and defining element, the appearance or type of the behaviour (the behavioural topography) may also be important. In our experience, MDT members may hold very different beliefs about behaviours based on their apparent characteristics rather than their function (we discuss this in more depth in Chapters 2 and 8). In one of the few texts to make reference to challenging behaviours in psychosis, Hogg and Hall (1992) identified those which they considered to be commonly reported in people with schizophrenia. These included:
⢠aggression (physical assaults on other people, damage to property, self-injury);
⢠antisocial behaviour (shouting or screaming, swearing, spitting, recurrent and uncontrolled vomiting, smearing of faeces, stealing);
⢠sexually inappropriate behaviour (nakedness in public, exposure of genitals, masturbation in public, sexual harassment/assault);
⢠bizarre behaviour (stereotypic behaviour such as rocking or odd speech, using nonsense or jumbled-up words, unusual gait or hand movements, altered routine such as sleep reversal, unrestrained eating and drinking, including dangerous substances).
This list identifies many of the behaviours we encounter clinically and which prove problematic for the person or for others. It does not, however, encompass self-neglect or other behaviours that may make the person vulnerable in the community to either exploitation or abuse (e.g. wearing unusual clothes, talking back to voices out loud, walking alone at night in a dangerous area).
As a first step in beginning to understand and work with problematic behaviours, we offer a broad classification encompassing three dimensions:
⢠behavioural excesses versus behavioural deficits;
⢠high versus low risk;
⢠self versus other (the direction of the risk).
An individual with psychosis may display behaviours that are not typically exhibited within the cultural or social norm (depending on where they live) or age group to which they belongs (e.g. wearing excessive clothing in the summer, swearing loudly in public); we term these ābehavioural excessesā. Alternatively, the individual may fail to display culturally or age-appropriate behaviours that are the norm for their peers. They may, for example, fail to attend to hygiene or personal safety, fail to engage in conversation when addressed or fail to display a normal range of emotional expressions; these we term ābehavioural deficitsā. Clearly, there is some overlap between these definitions and those symptoms used as criteria to define psychiatric disorders (such as those employed by the American Psychiatric Association, 2000). However, to some degree these symptoms relate to observable behaviours that are a result of more complex underlying processes. Behavioural deficits are a particular case in point. They may on the surface present as negative symptoms of schizophrenia (e.g. staying in bed all day). However, they may occur in response to positive symptoms (e.g. a voice telling the person that if they get up they will be punished). Our focus therefore is less on psychiatric diagnosis (although this is useful in defining some aspects of treatment and prognosis) and more on being clear about the behaviour exhibited, its function and its psychosocial impact.
A further dimension to defining problematic behaviour is whether the deficit or excess represents a high or low risk to self or others. Those with psychosis may exhibit behaviours that are clearly frustrating for those who care for them such as making excessive demands (e.g. asking for cigarettes or extra visits) or making inappropriate demands (e.g. banging on windows or making abusive phone calls). Such behaviours are clearly āexcessesā but do not necessarily pose a high risk. Other behaviours such as assaults on others or staff may pose a high risk of harm as well as being behavioural excesses. Similarly, behavioural deficits may present a relatively low risk (e.g. refusal to speak to certain team members or to tidy oneās living space) whilst others (e.g. refusal to maintain an adequate diet, refusal to take prescription medication for physical health conditions) may pose a significant but perhaps slightly longer-term risk to the person or their dependants. Finally, the direction of the behaviour in question (self versus other) is also a defining feature. For example, aggressive behaviours directed at staff may elicit more anger and resentment in the team than aggression directed at self, which may evoke sympathy and a greater helping response (Dagnan and Cairns, 2005). The interaction of these dimensions may be important: staff may respond with sympathy to apparently high-risk attempts at suicide (e.g. hanging) whilst lower-risk self-directed behaviours (e.g. scratching or cutting superficially) may be viewed as attempts at manipulation and hence regarded with more anger or dismissiveness. Clearly, the type of behaviour may predispose staff to make particular attributions about its purpose and subsequently alter their inclination to offer help; we discuss the role of staff attributions and beliefs further in Chapter 8.