Caregiving with Pride

Karen I. Frediksen-Goldsen

• Publisher: Routledge
• Year: 2014
• eBook ISBN: 9781136577475
• Topic: Medicine
• Subtopic: Health Care Delivery

Groundbreaking information for caregivers—and those receiving care

It is more common now than ever before for partners, family members, and friends to provide informal care, yet caregiving in the lesbian, gay, bisexual, and transgender (LGBT) communities has received little attention. Caregiving with Pride is the pioneering examination of caregiving experiences in the LGBT population. This important text also provides a frank discussion of the issues involved in needing and receiving care as well. Comprehensive and up-to-date, this both a timely account of an important field and practical information for implementing change.

Unique in its focus and scope, Caregiving with Pride offers readers original research and new summaries and analyses of existing literature. With a wide-ranging approach that is both readable and enlightening, this essential collection recognizes the changing nature of families as central to the issues of caregiving and LGBT communities. It features articles that insist on and illustrate the importance of taking both identity issues and socio-cultural policy contexts of caregiving into account. While maintaining a multifaceted biopsychosocial perspective that is critical to understanding the varied aspects of this topic, contributors discuss:

• the prevalence of caregiving with LGBT communities
• health issues and the needs of those requiring care
• the unique risk and protective factors impacting HIV/AIDS caregivers
• the psychological effects - positive and negative - of caregiving
• family and personal - "chosen family" - relationships
• interactions with formal systems of health and long-term care
• effects of history and social stigma on those needing and giving care
• how current social policies impede LGBT people in their access to care
• the ways established medical guidelines hinder LGBT caregivers in their efforts to help
• existing interventions and opportunities to better sever these communities
• and much more!

While Caregiving with Pride provides a detailed perspective of the current state of this often overlooked field, it also looks ahead and outlines a practical, useable blueprint for future research, services, and policies in marginalized communities.

As an informative stand-alone resource, Caregiving with Pride is essential for gerontologists, sociologists, historians, social workers, psychologists, educators, researchers, and policy makers. In addition, this collection is ideal as a supplementary text for students of aging, women studies, GLBT studies, sociology, and health studies as well as the larger GLBT community.

Index

Abuse, transgender people and, 105

Activities of caregiving, 44–46, 45t

Adultery, as punishable sex act, 94–95

Age

caregiver distress and, 59, 61–62, 64t

comparisons of caregivers/recipients, 27t

demographics of LGBT caregivers, 42t

LGBT community and, 4

as predictor of willingness to provide caregiving, 30t

resilience and, 56f, 57

Aging population

as caregivers, see Caregiving

caregiving in Native communities and, 76

comparisons of caregivers/recipients, 27t

discrimination and, 103

discussion and, 29–35

increase in, 2

predictors of willingness to provide caregiving, 30t

resilience and, 9

survey design/methodology and, 20–25

survey introduction and, 16–20

survey results and, 26–29

survey summary and, 15–16

transgender people and, 102–104

AIDS. see HIV/AIDS

American Indian LGBT community. see Two-spirit people

Americans with Disabilities Act, transgender people and, 99

Anal gonorrhea, as threat for older LGBT adults, 30

Antiretroviral therapy, HIV/AIDS and, 54

Anxiety, two-spirit people and, 76–77

ART. see Antiretroviral therapy

Attack (gay-related), past caregiving experiences and, 22

Behavioral techniques, SURE 2 and, 117–118, 120–121

Berdache, 78

Bias. see Discrimination

Blood cell count, transgender people and, 98

Blood clots, transgender people and, 99

Bone density, transgender people and, 98–99

Burden

comparisons of caregivers/recipients, 27t

correlation matrix of key variables, 47t

hierarchical multiple regression of caregiver burden for LGB family of origin/choice caregivers, 48t

as predictor of willingness to provide caregiving, 30t

predictors of, 46–48

as a result of caregiving, 19, 24

support and. see Informal support

two-spirit people and, 76–77, 87–88

Cancer

as threat for older LGBT adults, 30

transgender people and, 98–99

Cardiac disease. see Heart disease

Care rece...

Table of contents

• Cover
• Half Title
• Title Page
• Copyright Page
• Table of Contents
• About the Contributors
• Preface
• Caregiving with Pride: An Introduction
• Caregiving and Care Receiving Among Older Lesbian, Gay, and Bisexual Adults
• We Cannot Go It Alone: The Impact of Informal Support and Stressors in Older Gay, Lesbian and Bisexual Caregivers
• HIV/AIDS Caregiving: Predictors of Well-Being and Distress
• Caregiving Experiences Among American Indian Two-Spirit Men and Women: Contemporary and Historical Roles
• Transgender Health: Implications for Aging and Caregiving
• Exploring Interventions for LGBT Caregivers: Issues and Examples
• Caregiving Research, Services, and Policies in Historically Marginalized Communities: Where Do We Go from Here?
• Index