Involving Children and Young People in Health and Social Care Research

Jennie Fleming, Thilo Boeck

• Publisher: Taylor & Francis
• Year: 2012
• Print ISBN: 9780415523035
• eBook ISBN: 9781136298417
• Edition: 1
• Topic: Pedagogía
• Subtopic: Investigación en educación

Led by both children's rights perspectives and methodological arguments, there is an increasing emphasis on children and young people's participation in health and social care research by researchers, policy makers and funding bodies – with many now considering the active involvement of children and young people a requirement. There is little exploration of how to address and overcome the many challenges arising from their participation, however.

Divided into five parts, this practical book begins by considering what research with young people is and why we should do it, before leading the reader into how to undertake it. The book then provides practical examples of action and finishes with reflections about the whole process. Bringing together a variety of experienced researchers, from a wide range of backgrounds in health and social care and including young people, the chapters provide insight for practical action, as well as critical and theoretical reflection. Involving Children and Young People in Health and Social Care Research includes issues on:

• Understanding the reasons and processes for involving children and young people in research
• Making sure that involvement is meaningful and not merely tokenistic
• Developing research methods that are commensurate with different ages and abilities
• Ensuring adequate training and preparation, for children, young people and adults to make involvement meaningful
• Power and relationships between young people researchers and adult researchers
• Sustaining young people's interest and motivation
• Addressing ethical issues that arise throughout the research journey

Committed to partnership and participation throughout the entire process of the active involvement of children and young people in health and social care research, this text provides invaluable insights and is a resource for all those conducting research in and with children and young people.

Subject index

abuse, limits of confidentiality 119–21

A-CASI (audio computer-assisted self-interviewing) 120, 123

academic qualifications 76

accepting: circle 88; offers 87–8

access 181–2, 209, 210, 211–12

accessibility 70–2, 87

accountability 81

accreditation 77

action 3, 24, 97–9. see also Children's Commissioner for Wales project; confidentiality; diabetes research;physiotherapy research; service evaluation; sports access

active participants 7, 9–14, 201; feedback 124–5; putting their interests first 114; recruitment 135, 136

adapted dynamic cycling 109, 111, 117. see also physiotherapy research

adult experiences 146–7

advancing offers 88–9

Advice for Involving Young People (ALPHA) 43–8

age discrimination 54–5

agency 19, 23, 68, 220, 226; participatory research 199–201, 207; principles/practice 29–30, 33–5; sociological theories 23–5. see also social actors

Agenda Days 103, 104

AIDS/HIV 190

ALPHA Young People's Advisory Group 43–8

ambassadors 170–1

amnesia, collective 86

anonymity 65, 81, 82, 114

anxiety, researcher role 186, 188, 189, 192, 194

appreciative inquiry approach 143

Ariés, Phillipe 20

ASDAN (Award Scheme Development and Accreditation Network) 77

aspirations 28–9

assent, definition 64. see also informed consent

Associate Research Assistants 54–6. see also Centre for Social Action

audio computer-assisted sel...

Table of contents

• Cover
• Involving Children
• Title
• Copyright
• Table of Contents
• Acknowledgements
• Notes on Contributors
• Introduction
• Part1
• Part 2
• Part 3
• Part 4
• Part 5
• References
• Author Index
• Subject Index