The Sibling Relationship After Acquired Brain Injury
eBook - ePub

The Sibling Relationship After Acquired Brain Injury

Family Dynamics Across the Lifespan

  1. 166 pages
  2. English
  3. ePUB (mobile friendly)
  4. Available on iOS & Android
eBook - ePub

The Sibling Relationship After Acquired Brain Injury

Family Dynamics Across the Lifespan

About this book

This important book gives a voice to the lived experience of siblings and family members when one sibling has an acquired brain injury (ABI). ABI is associated with a range of physical, cognitive, behavioural and personality changes, many of which will be lifelong. Penelope Analytis examines how this condition affects the sibling relationship. Although siblings play an important role in our sense of identity, development and wellbeing, this relationship has been largely overlooked in the context of rehabilitation.

Combining research with stories of siblings' experiences of life after ABI, this book explores how siblings seek to continue their relationship across the lifespan and make sense of the impact of ABI. It looks at the concept of "post-traumatic growth" within the context of ABI and explores siblings' perceptions of growth after ABI, including shaping their life priorities, family relationships and values. It includes the perspectives of siblings themselves who have an ABI, recognising them as active members of this unique relationship, and of siblings of people with an ABI.

This is valuable reading for siblings and families impacted by ABI and professionals working with them who would like to better understand how to support siblings, as well as students in neuropsychology and related fields.

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Information

Publisher
Routledge
Year
2021
Print ISBN
9780367897987
eBook ISBN
9781000386127

Chapter 1

Perceptions of typical sibling relationships across the lifespan

We [siblings] all got along really well. We weren’t far apart, three years, three years and then five years. So we all, you know, we played, and we dicked around and did all that sort of stuff. And you go through those teenage years where everybody falls apart, well that's family. … And then as you get adult, you sort of work out ā€œAh, you’re not as bad as you lookedā€ and then you start seeing each other socially. We all went out to dinner occasionally … and definitely took Mum out for dinner. … The family things were very, very important. Very important.
(Tracy, sibling with an ABI)
The sibling relationship is a universal aspect of human experience (Cicirelli, 1995; Weisner, 1989). This universality is evident in the significant place sibling relationships hold across all cultures, even though cultural variations may exist in the status, roles and responsibilities given to siblings (Weisner, 1989). When asked to talk about her relationship with her siblings, Tracy, a sibling with an acquired brain injury (ABI), provided the above description. She captured many of the elements that contribute to making the sibling relationship unique within the family context. She reflected on how the relationship evolved across the life span from playmates in childhood to middle-aged friends supporting older parents. She also described fluctuations in the quality of the relationship, passing through periods of distance in adolescence and a rediscovery of closeness in adulthood. Her experiences will probably resonate with many adults reflecting on their sibling relationships and how they have changed. Sibling relationships are seen as involving closeness and love, but also conflict and rivalry, and are shaped by birth order, gender or broader family dynamics. In talking to people impacted by brain injury about sibling relationships, perceptions of ā€œtypicalā€ siblings formed the backdrop to their experiences. These perceptions shaped expectations of their siblings, experiences of the impact of brain injury on the relationship, and hopes for what the future would bring.
This chapter will explore typical sibling relationships as a basis for understanding the impact of brain injury on the sibling relationship discussed in later chapters. It will first consider aspects of the sibling relationship which make it a unique family relationship. It will then explore sibling relationships across childhood, adolescence and adulthood.

Unique aspects of the sibling relationship

The sibling relationship is unique among family relationships because of its duration, egalitarian nature, high degree of familiarity and emotional complexity. It is the longest family connection people will have, usually from birth to death (Cicirelli, 1995; White & Hughes, 2017). Research in Australia, for example, suggests that among people aged 75 years or older 43 per cent have monthly contact with a sibling (Baxter, 2016). Indeed, siblings may influence each other from before birth, when parents prepare their child for the arrival of a new sibling, and even after death, as the memory of a sibling emotionally impacts a person (Cicirelli, 1995). Being someone's sibling is a role which is not usually chosen. You become a sibling through birth or a legal process such as marriage or adoption. As a result, although siblings may become estranged and their relationship may end, their status as siblings remains unchanged. It is always possible, therefore, for the relationship to be rekindled later in life, something which is less likely among estranged friends.
The sibling relationship is also unique because is it relatively egalitarian, especially when siblings are older (Cicirelli, 1995). Unlike other family relationships, the sibling relationship includes complementary or hierarchical interactions similar to parent–child exchanges, and reciprocal interactions similar to peer exchanges (Howe et al., 2011). Consider, for example, an interaction between two pre-school siblings where the older sibling teaches the younger sibling a new game. The older sibling's role is similar to the parent teaching the younger child a new skill. Then consider these siblings when they are older, perhaps 10 and 12 years old. They play together, and both contribute to the game, teaching each other skills. Here they relate to each other as equals influencing each other's development. Of course, across the lifespan, siblings’ interactions will not always be equal. Indeed siblings may enjoy different statuses within the relationship due to broader factors such as their cultural background, family size and dynamics, or differing social or economic success as adults (Cicirelli, 1995).
Another unique aspect of the sibling relationship is that siblings usually share a strong sense of familiarity (Cicirelli, 1995; White & Hughes, 2017). Growing up in the same household facilitates the development of shared characteristics and shared histories, creating deep bonds between siblings. As a result, a sense of solidarity based on childhood memories may be formed, and this can be hard to achieve in other relationships (Kramer, 2010). Sibling familiarity, however, is a ā€œdouble-edged swordā€ because it also provides siblings with the unique knowledge of how to expertly tease and annoy each other (Kramer, 2010).
Furthermore, this familiarity creates the backdrop for the emotionally-charged and uninhibited interactions which are typical of the sibling relationship (Howe et al., 2011; White & Hughes, 2017). Thus, not only do siblings know exactly how to tease or annoy their brothers or sisters, they can also challenge them by displaying anger and frustration without jeopardising the relationship. In other words, they know that no matter how angry they get with their sibling, they will continue to be siblings. By contrast, similar expressions of anger and frustration towards friends could risk the friendship (White & Hughes, 2017).
As a result of the relative permanency of the sibling relationship and the high degree of familiarity between siblings, the sibling relationship can involve emotional extremes. Strong positive and negative feelings characterise the sibling relationship, and siblings’ interactions may quickly switch from harmonious to hostile, often for unclear reasons (Kramer, 2010). Some researchers have suggested considering this emotional ambivalence as an essential part of the relationship (Howe et al., 2011; Kramer, 2010). When talking to people about their sibling relationship within the context of brain injury, this mix of conflict and closeness was often their starting point. Irrespective of whether they had a brain injury or were the sibling of someone with a brain injury, they saw their relationship as naturally involving emotional extremes of love and hate. These emotions were intensely experienced and seen as a very natural aspect of being siblings. Sally, a young adult whose sibling has a brain injury, started by describing their relationship as ā€œkind of a weird mix between very normal sibling behaviour of wanting to rip each other's heads off and the closeness that comes with thatā€.
Conflict within the sibling relationship occurs frequently. For example, observational studies have suggested that children may have up to eight sibling interactions per hour that involve conflict (Howe et al., 2011). Siblings, particularly in childhood, spend a considerable amount of time together which means they must share space and property and interact over long periods of time (Howe et al., 2011). Within this context, it is natural for their goals and desires to differ, leading to arguments (Howe et al., 2011). Jon, a young adult with ABI, described such interactions with his sibling:
I feel like [when] we get along it's great, but I think we do get sick of each other very quickly … So when things are good, they’re really good, but when things are bad, we can’t stand each other.
As well as experiencing conflict, siblings, from childhood through to adulthood, also act as companions and confidants, and siblings’ intimate knowledge of each other means they can provide lifelong support (Cicirelli, 1991; McHale et al., 2012). The next section explores further this sense of connection and support across the lifespan, including the roles siblings fulfil at different life stages.

Sibling relationships across the lifespan

The sibling relationship is often the longest family relationship a person will experience. Siblings usually play a role in each other's lives across the lifespan, from childhood to older adulthood. Yet, the majority of research examining the sibling relationship has focused on childhood and adolescence. However, some researchers have attempted to redress this. Their work has suggested that siblings fulfil important roles across the lifespan with perhaps some roles being more prominent at particular life stages (Cicirelli, 1995; Goetting, 1986). This section will provide a brief overview of the sibling relationship across childhood, adolescence and adulthood, with a focus on roles siblings fulfil and factors which may influence the relationship.

Early to middle childhood

In childhood and adolescence, siblings often live together and during this time they are likely to spend a considerable amount of time together, especially if they are close in age (Dunn, 1989; Howe et al., 2011). The number of interactions they have during this time means that siblings have a considerable impact on each other's development (McHale et al., 2012). Childhood is also the life stage when siblings form close bonds with each other and develop a sense of familiarity that may characterise their relationship into adulthood (Howe et al., 2011). During childhood, siblings (Youngblade & Dunn, 1995) fulfil roles as companions and teachers, but also combatants (McHale et al., 2012).
From early childhood, siblings act as playmates and companions. In observational studies of pre-school siblings playing together, Dunn (1989) commented that the interactions siblings displayed were surprisingly complex, given their young ages. Thus, pre-school siblings from about two years of age and older planned the rules and scenarios of their pretend play (e.g. ā€œPretend you’re a baby or my mummyā€) and the emotions and behaviours they were to act out (e.g. ā€œMe can’t get to sleepā€) (Dunn, 1989, p. 111). Such games require children to develop their social understanding, that is an understanding of others’ intentions and feelings and of the rules which govern social interactions (Dunn, 1989). Furthermore, although children may engage in pretend play with parents, research suggests that pre-schoolers engage more in such play with each other than with parents. Siblings are much more likely to enjoy an imaginative game than parents and the shared enjoyment gives this interaction a different quality to parent–child play (White & Hughes, 2017). In interviewing siblings about their relationship, this role of siblings as playmates and companions was frequently mentioned, as Paul, a child whose sibling has an ABI explained:
I got lots of them [games], so there's always something you can do. … If you’re the only child, you can’t really play with anyone at home. So it's good fun that. Hang out [with your siblings].
Indeed, even before the birth of younger siblings, the expectation of companionship is there. Alex, a young adult with an ABI, discussed this as he reflected on in his childhood before having siblings:
Being on the farm … there's no one there to really play with. … I wanted somebody there to play with, you know? It's what I asked Mum and Dad for Christmas for every year. ā€œI want a brother.ā€ … So it was just to have somebody, have somebody else young and around that we could do stuff. … I just wanted another kid around to do stuff with.
Play with siblings can provide essential opportunities to develop skills. Imaginative play, for example, provides siblings with opportunities to engage in a symbolic representation of the world, and such engagement forms an integral part of a child's development (Kramer, 2010). Siblings’ play also provides opportunities to experience positive interactions, creating the foundations of the sibling bond. Furthermore, play interactions, as well as observations of interactions between older siblings and parents, provide opportunities for younger siblings to develop language and conversation skills (Dunn, 1989). The sibling relationship in early childhood, therefore, provides opportunities for siblings to explore and master their environment through observation, imitation and play (Teti et al., 1989).
During childhood, sibling interactions lead to another important role as teachers and guides, especially for older siblings who may model skills for younger siblings to emulate, as well as actively teaching them new skills. Frederic, an adult with an ABI, reflected on many of these aspects when recollecting his childhood with his older siblings:
We were always really close as kids. … I learned to walk and talk quickest out of all three of us ...

Table of contents

  1. Cover
  2. Half Title
  3. Series Page
  4. Title Page
  5. Copyright Page
  6. Contents
  7. Introduction
  8. 1 Perceptions of typical sibling relationships across the lifespan
  9. 2 Acquired brain injury: causes, variability in outcomes and impact on the individual
  10. 3 The impact of having a sibling with an acquired brain injury on the uninjured sibling
  11. 4 The sibling relationship after acquired brain injury: supporting adaptation and reciprocity
  12. 5 The family as a system: the role of the family in shaping the sibling relationship after acquired brain injury
  13. 6 Social stigma, acquired brain injury and the sibling relationship
  14. 7 Personal growth after acquired brain injury and the sibling relationship
  15. Conclusion: supporting the sibling relationship after acquired brain injury
  16. Useful resources
  17. References
  18. Index

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