eBook - PDF

Genetisches Screening, Thalassämie und Ethik

Name: Genetisches Screening, Thalassämie und Ethik
ISBN: 9783631716311

Eine Interviewstudie mit Betroffenen auf Zypern

Charitini Hadjiafxenti,

Gerald Neitzke,

170 pages
English
PDF
Available on iOS & Android

eBook - PDF

Genetisches Screening, Thalassämie und Ethik

Eine Interviewstudie mit Betroffenen auf Zypern

Charitini Hadjiafxenti,

Gerald Neitzke,

About this book

Dieses Buch ist ein Beitrag zur ethischen Bewertung von Carrier-Screening. Zypern führte 1983 als weltweit erstes Land einen verpflichtenden Gentest ein: Vor Eheschließung müssen beide Partner untersuchen lassen, ob sie Träger eines Gens ("Carrier") für Thalassämie sind, eine autosomal rezessiv vererbte Bluterkrankung. Dadurch sollen die durch die Geburt von Kindern mit Thalassämie entstehenden Kosten gesenkt und entstehendes Leid für Familien vermieden werden. Interviews mit betroffenen Paaren auf Zypern über deren Erfahrungen mit dem Thalassämie-Programm geben Aufschlüsse über die Folgen des Gentests für Partnerschaft und Reproduktion. Die Autoren hinterfragen die Aufklärung und Information über das Testergebnis und untersuchen, ob es aufgrund des Tests zu Diskriminierung und anderen negativen Konsequenzen kommt.

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Yes, you can access Genetisches Screening, Thalassämie und Ethik by Charitini Hadjiafxenti, Gerald Neitzke in PDF and/or ePUB format, as well as other popular books in Social Sciences & Health Care Delivery. We have over one million books available in our catalogue for you to explore.