Improving the Experience of Health Care for People Living with Sensory Disability
eBook - ePub

Improving the Experience of Health Care for People Living with Sensory Disability

Knowing What is Going On

  1. English
  2. ePUB (mobile friendly)
  3. Available on iOS & Android
eBook - ePub

Improving the Experience of Health Care for People Living with Sensory Disability

Knowing What is Going On

About this book

How does a patient with sensory disability – such as a hearing or vision impairment, or both – get effective communication from a health care provider?

Too often, the answer is that they don't. Communication is crucial for any professional–patient relationship, not least when disability is in the mix. For people living with sensory disability, however, the challenge of knowing what is going on with their healthcare, participating in shared decision making, and retaining an appropriate level of agency, is even greater. Using verbatim testimony from people with first-hand experience of sensory disability, this book explores issues such as accessibility barriers in consent forms, patient information sheets and other paperwork; situational vulnerability to abuse and neglect; and dehumanisation, infantilisation, and disempowerment in care.

Written by Dr Annmaree Watharow MD PhD, a doctor and author with personal experience of sensory disability, the stories in this book are told using people's own words, to allow readers to hear directly from the people who most need their own agency. Vital reading for doctors, nurses, health care providers, and social support workers in practice and training, this book will change the way you view sensory disability.

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Yes, you can access Improving the Experience of Health Care for People Living with Sensory Disability by Dr Annmaree Watharow MD, PhD, Damian Mellifont, Jennifer Smith-Merry, Dr Damian Mellifont PhD,Dr Jennifer Smith-Merry PhD in PDF and/or ePUB format, as well as other popular books in Social Sciences & Higher Education. We have over one million books available in our catalogue for you to explore.

Information

Table of contents

  1. Cover
  2. Half Title
  3. Title Page
  4. Copyright Page
  5. viiAcknowledgement of country
  6. viiiixAcknowledgements
  7. xi
  8. xiiiContents
  9. xivxvContent warning
  10. xvixviiLearning objectives
  11. Introduction
  12. 1 Miscommunication and pain
  13. 2 The undeniable importance of communication
  14. 3 Who are we?
  15. 4 Health threats
  16. 5 The triple burden of COVID-​19
  17. 6 What really happens in hospitals
  18. 7 Security. Knowledge. Power
  19. 7 The expert-​knowers speak
  20. 9 Respect. Communication. Care
  21. 10 Strategies for systemic transformation
  22. 238239Recommended further reading
  23. 241Suggested learning activities
  24. 242243References
  25. Index