
The Privacy Prescription
Why Health Data Privacy Is in Critical Condition and How to Fix It
- English
- ePUB (mobile friendly)
- Available on iOS & Android
The Privacy Prescription
Why Health Data Privacy Is in Critical Condition and How to Fix It
About this book
Your health data is being captured, sold, and analyzed everyday- and our health data privacy laws are not keeping pace. In fact, the average American will generate 2, 750 times more health data not protected by our current privacy laws than data protected by them.
The Privacy Prescription: Why Health Data Privacy Is in Critical Condition and How to Fix It establishes the middle ground missing in debates about healthcare data privacy and outlines a sensible path forward, with suggestions gleaned from some of the most qualified people across the healthcare spectrum.
In these pages you'll discover:
- The pros and cons of one of the least understood laws today: HIPAA
- How a $5 billion fine wasn't enough to teach Facebook a lesson about its health groups
- Why privacy "nutrition labels" might be one of the secrets to raising privacy standards
- The consequences of a "devious defecator" and at-home DNA test kits
- Tools to help you protect your data
We have the ability as a society to keep individuals' data safe without stifling research or important medical advancements. But it will take effort. As healthcare increasingly relies on Big Data and technology exerts a greater influence on medical practice, The Privacy Prescription is more vital than ever.
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Information
Table of contents
- Contents
- An Urgent Infection in the Czech Republic
- PART I - GETTING ACQUAINTED WITH HEALTH PRIVACY LAWS
- HIP... HIP... Hooray? A History of HIPAA
- The Seven Big Ways HIPAA Falls Short
- Five Reasons HIPAA Is Better Than Youâd Expect
- PART II - WHY HEALTH DATA IS MORE VULNERABLE THAN EVER
- What Isnât Protected: A Crash Course on Health Data Outside of HIPAA
- Facing Down Facebook: Andrea Downingâs Story
- The New Gold Rush: Mining for Healthcare Data
- âAll Our Data Is Health Dataâ: The Practice of Digital Phenotyping
- When Smartphones Arenât So Smart on Privacy
- Not So Epic: What the EMR Vendor Tells Us about the Old Guard of Players
- 23 and You? Genetic Data and Privacy
- âA Living Museum of Misunderstandingâ: What COVID-19 Has Revealed about Data Privacy
- PART III - THE PROMISE OF HEALTH DATA AND THE UNINTENDED CONSEQUENCES OF PRIVACY LAWS
- The Potential for Big Data
- âThe Seven Stages of Hellâ: Do Privacy Laws Limit Innovation?
- The Prism: Exploring Three Arguments for Easing Data Privacy Laws
- The Holy Grail of Interoperability: How to Make Medical Records Match
- PART IV - WRITING THE PRESCRIPTION: HOW TO CHART A PATH FORWARD
- Guiding the Way with the CCPA: Legal Options for Data Privacy
- Taking a Bite Out of the Privacy Problem: The Path Forward
- How to Protect Your Data (If Youâd Like): A Practical Guide
- Acknowledgments
- Appendix