Human Germline Genome Modification and the Right to Science

A Comparative Study of National Laws and Policies

Andrea Boggio, Cesare P. R. Romano, Jessica Almqvist

• Publisher: Cambridge University Press
• Year: 2020
• Print ISBN: 9781108499873
• eBook ISBN: 9781108607278
• Topic: Law
• Subtopic: Medical Law
• Index: Law

The advent of the CRISPR/Cas9 class of genome editing tools is transforming not just science and medicine, but also law. When the genome of germline cells is modified, the modifications could be inherited, with far-reaching effects in time and scale. Legal systems are struggling with keeping up with the CRISPR revolution and both lawyers and scientists are often confused about existing regulations. This book contains an analysis of the national regulatory framework in eighteen selected countries. Written by national legal experts, it includes all major players in bioengineering, plus an analysis of the emerging international standards and a discussion of how international human rights standards should inform national and international regulatory frameworks. The authors propose a set of principles for the regulation of germline engineering, based on international human rights law, that can be the foundation for regulating heritable gene editing both at the level of countries as well as globally.

Table of contents

• Cover
• Half-title page
• Title page
• Copyright page
• Dedication
• Contents
• List of Figures
• List of Tables
• Notes on Contributors
• Foreword
• Preface
• Acknowledgments
• List of Abbreviations
• 1 Introduction
• 2 The Governance of Human (Germline) Genome Modification at the International and Transnational Level
• The Regulation of Genome Modification at the National Level
• Index