Privacy, Confidentiality, and Health Research
eBook - PDF

Privacy, Confidentiality, and Health Research

  1. English
  2. PDF
  3. Available on iOS & Android
eBook - PDF

Privacy, Confidentiality, and Health Research

About this book

The potential of the e-health revolution, increased data sharing, database linking, biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized, though, privacy and confidentiality will have to be dealt with carefully. Problematically, many conventional approaches to such pivotal matters as consent, identifiability, and safeguarding and security are inadequate. In many places, research is impeded by an overgrown thicket of laws, regulations, guidance and governance. The challenges are being heightened by the increasing use of biospecimens, and by the globalization of research in a world that has not globalized privacy protection. Drawing on examples from many developed countries and legal jurisdictions, the book critiques the issues, summarizes various ethics, policy, and legal positions (and revisions underway), describes innovative solutions, provides extensive references and suggests ways forward.

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Yes, you can access Privacy, Confidentiality, and Health Research by William W. Lowrance in PDF and/or ePUB format, as well as other popular books in Law & Medical Law. We have over one million books available in our catalogue for you to explore.

Information

Topic
Law
Subtopic
Medical Law
Index
Law

Table of contents

  1. Cover
  2. Privacy, Confidentiality, and Health Research
  3. Series
  4. Title
  5. Copyright
  6. Dedication
  7. Contents
  8. Preface and acknowledgments
  9. 1: Introduction
  10. 2: Data, biospecimens, and research
  11. 3: Privacy, confidentiality, safeguards
  12. 4: Broad privacy and data protection regimes
  13. 5: Healthcare, public health, and research regimes
  14. 6: Consent
  15. 7: Identifiability and person-specific data
  16. 8: Genetics and genomics
  17. 9: Safeguards and responsibilities
  18. 10: Data sharing, access, and transfer
  19. 11: Ways forward
  20. Bibliography
  21. Index