- 224 pages
- English
- ePUB (mobile friendly)
- Available on iOS & Android
About this book
The story of how a boy came to be infected with blood borne viruses, and in spite of multiple death sentences, lived to become the world's first ever LGBTQ+ Ambassador for Haemophilia.
'Faced daily with my own mortality, I chose to live fabulouslyâeach of my fifty-five years has been full of love, laughter, adventure⌠and feather boas.'
Mark Ward is the founder of Haemosexualâan online support and information resource championing equality, education and better healthcare for everyone with a bleeding disorder, no matter what their sexual orientation. Mark's battle to secure a public enquiry into the Infected Blood Scandalâwhich is finally due to report in Mayâhas led him to places he never expected, and to meet people he never dreamt of.
'Mark is a survivor, literally, of the HIV visited upon him through contaminated blood, but rather than merely revelling in the simple fact of life, he has heroically dedicated himself to ensuring life remains possible for others.'âSam Stein KC
This forthright (and fabulous) memoir, recounts the journey of an unlikely lad from Letchworth who grows up to be a renowned and respected rights campaigner. With foreword by Sam Stein KC.
'This is a remarkable bookâbrave, funny and honest. Ward is a gifted writer with a profound story to tell and he does it beautifully.' â Peter Moffat
'This is a story of one of the worst cover ups of our time, and the author's part in the fight to expose it, but it is also the story of a human being who managed to live a life filled with joy despite the mistreatment he endured. An inspirational tale.' â Elkan Abrahamson, Director of Covid Enquiry Department, Jackson Lees Law Group
'This is a profound and important book from a courageous individual who has lived through the darkest episode of medical history, and contributed to the resolution for the thousands impacted in the UK' â Brian O'Mahony, CEO of Irish Haemophilia Society
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Information
Table of contents
- Praise
- Title Page
- Dedication
- Contents
- Foreword
- Prologue
- 1. A Special Little Boy
- 2. A Wonder Drug?
- 3. And Lift Off
- 4. Watch Out World, Here I Come!
- 5. Finding Myself
- 6. Busy Being Happy
- 7. To Hell and Back
- 8. Life and Death
- 9. Queen of Hearts
- 10. Dark Days
- 11. High on a Hill was a Lonely Goatherd
- 12. On the Campaign Trail
- 13. Fighting On
- 14. Pirates and Popping the Question
- 15. Digging Deep
- 16. The Truth, at Last
- 17. The âCâ Word
- 18. A First-Class Future
- Epilogue
- Acknowledgements
- Dedicated To
- Haemosexual
- Biography
- Also from Inkandescent
- About the Publisher
- Copyright