Ethical Considerations for Research on Housing-Related Health Hazards Involving Children explores the ethical issues posed when conducting research designed to identify, understand, or ameliorate housing-related health hazards among children. Such research involves children as subjects and is conducted in the home and in communities. It is often conducted with children in low-income families given the disproportionate prevalence of housing-related conditions such as lead poisoning, asthma, and fatal injuries among these children. This book emphasizes five key elements to address the particular ethical concerns raised by these characteristics: involving the affected community in the research and responding to their concerns; ensuring that parents understand the essential elements of the research; adopting uniform federal guidelines for such research by all sponsors (Subpart D of 45 CFR 46); providing guidance on key terms in the regulations; and viewing research oversight as a system with important roles for researchers, IRBs and their research institutions, sponsors and regulators of research, and the community.
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Topic
Social SciencesIndex
Social SciencesTable of contents
- COVER PAGE
- THE NATIONAL ACADEMIES
- COMMITTEE ON ETHICAL ISSUES IN HOUSING-RELATED HEALTH HAZARD RESEARCH INVOLVING CHILDREN, YOUTH, AND FAMILIES
- BOARD ON CHILDREN, YOUTH, AND FAMILIES
- Acknowledgments
- contents
- Boxes, Figures, and Tables
- Preface
- Executive Summary
- 1 Introduction
- 2 Housing and Health
- 3 Grimes v. Kennedy Krieger Institute: Revisiting the Ethical Issues
- 4 Characteristics of Housing Health Hazards Research
- 5 Community Involvement
- 6 Parental Permission, Consent, and Payment
- 7 Researchers’ Responsibilities
- 8 Research Oversight
- References and Bibliography
- Appendix Biographical Sketches of Committee Members and Staff
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