Researching Health Together

Engaging Patients and Stakeholders, From Topic Identification to Policy Change

Emily B. Zimmerman

• Publisher: SAGE Publications, Inc
• Year: 2020
• Print ISBN: 9781544351063
• eBook ISBN: 9781544351094
• Edition: 1
• Topic: Medicine
• Subtopic: Public Health, Administration & Care

The challenges of addressing health disparities, the ethical imperative to include stakeholders in research, and the slow translation of research evidence into practice are all driving a movement towards more community-based and participatory approaches to research. Researching Health Together brings together authors who have produced innovative methods or implemented projects focused on different stages of the research process, from question development to evaluation and translation. Editor Emily B. Zimmerman gathers exemplary new methods and projects into one place for the benefit of students designing research projects and proposals, those learning stakeholder-engaged methods, and those involved in implementing and funding stakeholder-engaged projects. Each chapter addresses: how engagement was conceptualized, organized, and implemented; how engagement was evaluated; impacts on processes and outcomes of the project; and facilitators, barriers, and lessons learned. The book serves as a core textbook for courses in community-based health research at the graduate level.

"[This book] focuses only on translational health research and expands beyond CBPR to include practice-based research networks (PBRN) and stakeholder-engaged research within health systems.... The overall strengths of this book are its in-depth and almost inspirational focus on CBPR methodology, be those actual geographic or cultural communities or disease-based communities.... Researching Health Together, in its first edition, is a necessary bridge from the theory of participatory health research to its application across research environments." - Journal of Participatory Research Methods

Table of contents

• Cover
• Acknowledgements
• Half Title
• Title Page
• Copyright Page
• Contents
• Foreword
• Acknowledgments
• About the Editor
• Introduction
• Part I Stakeholder Engagement in Research Topic Identification and Modeling
• Chapter 1 Grassroots to Grasstops: A Stepwise Approach to Identify Community Health Priorities
• Chapter 2 Deliberative Engagement of Communities in Decisions About Research Spending (DECIDERS)
• Chapter 3 Group Model Building as a Community Engagement Strategy
• Chapter 4 The SEED Method: A Multi-Level Stakeholder Approach to Research Question Development and Prioritization
• Part II Stakeholder Engagement in Research Design
• Chapter 5 The Community Engagement Studio: Tapping Into the Lived Experience of Community Members to Enhance Research
• Chapter 6 The History of PCORnet®
• Chapter 7 Partners, Not Participants: Engaging Patients in the American BRCA Outcomes and Utilization of Testing (ABOUT) Network
• Chapter 8 Engagement Methods for Practice-Based Research Networks and the Challenges With Health Information Technology Implementation
• Part III Implementing Stakeholder-Engaged Research
• Chapter 9 Free Range Humans: Engaging Patients, Practices, Providers, and People on the High Plains
• Chapter 10 Engaging Stakeholders in Implementation of Evidence-Based Programs
• Chapter 11 Communities Engaged and Advocating for a Smoke-free Environment (CEASE)
• Chapter 12 Translating Evidence to Policy: A Case Study of the San Francisco Soda Tax
• Part IV Stakeholder Engagement in Health and Health Systems Interventions
• Chapter 13 Comparative Effectiveness Research: Stakeholder Engagement for a Comprehensive Perspective
• Chapter 14 Achieving Patient-Centered Health Care Innovation Through Stakeholder Engagement
• Chapter 15 Community Engagement in an Urban AIAN Community to Address Diabetes Prevention
• Chapter 16 Boot Camp Translation
• Part V Governance, Evaluation, and Ethics in Stakeholder-Engaged Research
• Chapter 17 Building the Proper Foundation: Governance for Stakeholder-Engaged Research
• Chapter 18 Evaluating Engagement: Does the Involvement of Stakeholders Improve Research?
• Chapter 19 Collaborating to Evaluate: The Sí Texas Partnership-Centered Evaluation Model
• Chapter 20 Ethics Considerations When Involving Patients as Partners in Health Research
• Acronyms
• Glossary
• References
• Index
• About the Contributors