Hope and Suffering

Children, Cancer, and the Paradox of Experimental Medicine

Gretchen Krueger

• Publisher: Johns Hopkins University Press
• Year: 2020
• eBook ISBN: 9781421429182
• Edition: 0
• Topic: Medicine
• Subtopic: Ethics in Medicine

Gretchen Krueger's poignant narrative explores how doctors, families, and the public interpreted the experience of childhood cancer from the 1930s through the 1970s. Pairing the transformation of childhood cancer from killer to curable disease with the personal experiences of young patients and their families, Krueger illuminates the twin realities of hope and suffering.

In this social history, each decade follows a family whose experience touches on key themes: possible causes, means and timing of detection, the search for curative treatment, the merit of alternative treatments, the decisions to pursue or halt therapy, the side effects of treatment, death and dying—and cure. Recounting the complex and sometimes contentious interactions among the families of children with cancer, medical researchers, physicians, advocacy organizations, the media, and policy makers, Krueger reveals that personal odyssey and clinical challenge are the simultaneous realities of childhood cancer.

This engaging study will be of interest to historians, medical practitioners and researchers, and people whose lives have been altered by cancer.

Table of contents

• Cover
• Title Page
• Copyright Page
• Contents
• Acknowledgments
• Introduction
• 1 “Glioma Babies,” Families, and Cancer in Children in the 1930s
• 2 “Cancer, The Child Killer”: Jimmy and the Redefinition of a Dread Disease
• 3 Death Be Not Proud: Children, Families, and Cancer in Postwar America
• 4 “Against All Odds”: Chemotherapy and the Medical Management of Acute Leukemia in the 1950s
• 5 “Who’s Afraid of Death on the Leukemia Ward?”: Remission, Relapse, and Child Death in the 1960s and 1970s
• 6 “The Truly Cured Child”: Prolonged Survival and the Late Effects of Cancer
• Conclusion
• Notes
• Index