Living Well with a Serious Illness
eBook - ePub

Living Well with a Serious Illness

A Guide to Palliative Care for Mind, Body, and Spirit

  1. English
  2. ePUB (mobile friendly)
  3. Available on iOS & Android
eBook - ePub

Living Well with a Serious Illness

A Guide to Palliative Care for Mind, Body, and Spirit

About this book

A practical guide for understanding how palliative care can improve quality of life for patients and their caregivers.

Robin Bennett Kanarek was a registered nurse working with patients suffering from chronic medical conditions when her ten-year-old son was diagnosed with leukemia. As her son endured grueling treatments, Robin realized how often medical professionals overlook critical psychological, emotional, and spiritual support for people with life-threatening illnesses. Living Well with a Serious Illness is the culmination of decades of Robin's work to advance the field of palliative care.

Although palliative care is often associated with hospice and end-of-life planning, Kanarek argues for a more expanded definition that incorporates palliative care earlier in patients' journeys. Living Well with a Serious Illness helps patients and their caregivers understand

ā€¢ what palliative care entails
ā€¢ how to access the support they need when going through a serious illness
ā€¢ what questions to ask medical professionals
ā€¢ how to navigate advanced care planning
ā€¢ definitions of common terminology used with end-of-life planning
ā€¢ the importance of spiritual care, coping strategies, and emotional support
ā€¢ how to become an advocate for palliative care

This book illuminates the importance of seeing patients as individuals who can benefit from care for their body, mind, and spiritā€”the core tenet of palliative care.

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Yes, you can access Living Well with a Serious Illness by Robin Bennett Kanarek in PDF and/or ePUB format, as well as other popular books in Medicine & Caregiving. We have over one million books available in our catalogue for you to explore.

Information

Publisher
Johns Hopkins University Press
Year
2023
eBook ISBN
9781421445724
Topic
Medicine
Subtopic
Caregiving

Table of contents

  1. Cover
  2. Title Page
  3. Copyright Page
  4. Dedication
  5. Contents
  6. Introduction. Davidā€™s Story
  7. Chapter 1. What Is Palliative Care?
  8. Chapter 2. Barriers to Palliative Care: Taking Care of the Person versus Fighting the Disease
  9. Chapter 3. How We Want to Die: Palliative Careā€™s Benefits for Patients and Their Loved Ones
  10. Chapter 4. How to Get the Care You Want: Knowing What to Ask For, What to Expect, and What to Demand
  11. Chapter 5. How to Cope When Illness Changes Everything: Quality-of-Life Care Includes the Family
  12. Chapter 6. Putting It All Together: Creating an Action Plan for When the End Is Near
  13. Chapter 7. Spirituality and Well-Being: Care of the Spirit Matters Too
  14. Chapter 8. Grief: Tapping into Restorative Sources after Goodbye
  15. Chapter 9. Making Palliative Care Mainstream: What Legislators, Philanthropists, Educators, and You Can Do
  16. Epilogue. Davidā€™s Legacy: The Kanarek Family Foundation
  17. Acknowledgments
  18. Resources
  19. Notes
  20. Index
  21. About the Author