Living with HHT
eBook - ePub

Living with HHT

Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia

  1. English
  2. ePUB (mobile friendly)
  3. Available on iOS & Android
eBook - ePub

Living with HHT

Understanding and Managing Your Hereditary Hemorrhagic Telangiectasia

About this book

Everything you need to know about nosebleeds, arteriovenous malformations, and other symptoms of HHT.

Hereditary Hemorrhagic Telangiectasia (HHT) is a rare genetic disorder that causes blood vessel abnormalities in the nose, skin, gastrointestinal tract, lungs, brain, and liver. Nosebleeds are the most common symptom of HHT, but abnormal vessels in other organs, if they are not diagnosed and treated, can lead to serious medical complications, including stroke, hemorrhage, anemia, and brain abscess.

Psychologist Sara Palmer, who has HHT herself and is an expert in helping people cope with health conditions, draws on current research as she thoroughly describes the symptoms of HHT, explains how the diagnosis is made (and often missed), and details treatment options. While addressing the medical aspects of HHT, Palmer also reveals how people affected by the disorder can maintain their emotional health, take care of family members, and live life as fully as possible.

Enriched with illustrations, personal stories of people living with HHT, a glossary, and contact information for the HHT Centers of Excellence (which provide coordinated medical treatment for people with the disorder), Living with HHT is a complete resource for individuals with HHT and their families. This guide is also essential for health professionals seeking more information about this underdiagnosed disease.

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Yes, you can access Living with HHT by Sara Palmer in PDF and/or ePUB format, as well as other popular books in Medicine & Diseases & Allergies. We have over one million books available in our catalogue for you to explore.

Table of contents

  1. Cover Page
  2. Series Page
  3. Title Page
  4. Copyright Page
  5. Dedication
  6. Contents
  7. Acknowledgments
  8. Introduction: What in the World Is HHT?
  9. Part I. The Many Faces of HHT
  10. Part II. Living Well with HHT
  11. Part III. Into the Future
  12. Notes
  13. Glossary
  14. Resources
  15. Index