Specimen Science
eBook - ePub

Specimen Science

Ethics and Policy Implications

  1. English
  2. ePUB (mobile friendly)
  3. Available on iOS & Android
eBook - ePub

About this book

Advances in medicine often depend on the effective collection, storage, research use, and sharing of human biological specimens and associated data. But what about the sources of such specimens? When a blood specimen is drawn from a vein in your arm, is that specimen still you? Is it your property, intellectual or otherwise? Should you be allowed not only to consent to its use in research but also to specify under what circumstances it may be used? These and other questions are at the center of a vigorous debate over the use of human biospecimens in research. In this book, experts offer legal, regulatory, and ethical perspectives on balancing social benefit and human autonomy in biospecimen research.

After discussing the background to current debates as well as several influential cases, including that of Henrietta Lacks, the contributors consider the rights, obligations, risks, and privacy of the specimen source; different types of informed consent under consideration (broad, blanket, and specific); implications for special patient and researcher communities; and the governance of biospecimen repositories and the responsibilities of investigators.

Contributors
Rebecca A. Anderson, Heide Aungs, Avery Avrakotos, Mark Barnes, Jill Barnholtz-Sloan, Benjamin Berkman, Barbara E. Bierer, Mark A. Borreliz, Jeffrey R. Botkin, Dan Brock, Ellen Wright Clayton, I. Glenn Cohen, Lisa Eckstein, Barbara J. Evans, Emily Chi Fogler, Nanibaa' A. Garrison, Pamela Gavin, Aaron J. Goldenberg, Christine Grady, Kate Gallin Heffernan, Marylana Saadeh Helou, Sara Chandros Hull, Elisa A. Hurley, Steven Joffe, Erin P. Johnson, Julie Kaneshiro, Aaron S. Kesselheim, Isaac Kohane, David Korn, Russell Korobkin, Bernard Lo, Geoffrey Lomax, Kimberly Hensle Lowrance, Holly Fernandez Lynch, Bradley A. Malin, Karen J. Maschke, Eric M. Meslin, P. Pearl O'Rourke, Quinn T. Ostrom, David Peloquin, Rebecca Pentz, Jane Perlmutter, Ivor Pritchard, Suzanne M. Rivera, Erin Rothwell, Andrew P. Rusczek, Rachel E. Sachs, Carol Weil, David Wendler, Benjamin Wilfond, Susan M. Wolf

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Yes, you can access Specimen Science by Holly Fernandez Lynch,Barbara E. Bierer,I. Glenn Cohen,Suzanne M. Rivera, Arthur L. Caplan in PDF and/or ePUB format, as well as other popular books in Medicine & Ethics in Medicine. We have over one million books available in our catalogue for you to explore.

Information

Publisher
The MIT Press
Year
2017
eBook ISBN
9780262339728
Edition
0

Table of contents

  1. Cover
  2. Series page
  3. Title page
  4. Copyright page
  5. Dedication
  6. Table of Contents
  7. Series Foreword
  8. Acknowledgments
  9. Introduction
  10. Iā€ƒBackground and Foundations
  11. IIā€ƒRoots of the Debate: Autonomy, Justice, and Privacy
  12. IIIā€ƒConsent and Its Implications
  13. IVā€ƒSpecial Populations and Contexts
  14. Vā€ƒGovernance, Accountability, and Operational Considerations
  15. Contributors
  16. Index
  17. Basic Bioethics