
- 320 pages
- English
- PDF
- Available on iOS & Android
About this book
Drawing on fieldwork with British Pakistani clients of a UK genetics service, this book explores the personal and social implications of a 'genetic diagnosis'. Through case material and comparative discussion, the book identifies practical ethical dilemmas raised by new genetic knowledge and shows how, while being shaped by culture, these issues also cross-cut differences of culture, religion and ethnicity. The book also demonstrates how identifying a population-level elevated 'risk' of genetic disorders in an ethnic minority population can reinforce existing social divisions and cultural stereotypes. The book addresses questions about the relationship between genetic risk and clinical practice that will be relevant to health workers and policy makers.
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Information
Table of contents
- Title page-Negotiating Risk
- Contents
- List of Figures
- Acknowledgements
- Introduction
- Chapter 1-Medical and Public Perceptions of Consanguineoud Marriage and Genetic Risk
- Chapter 2-Close Kin Marriages: Some Anthropological Theory and European History
- Chapter 3-British Pakistani Cousin Marriages: Balancing Marital Risks
- Chapter 4-Medical Surveillance and Diagnostic Uncertainty
- Chapter 5-Responding to Reproductive Risk
- Chapter 6-Foretelling and Managing Infant Death
- Chapter 7-Genetic Screening and the Extended Family
- Chapter 8-Genetic Risk in Context
- Bibliography
- Index