The Long COVID Survival Guide

How to Take Care of Yourself and What Comes Next—Stories and Advice from Twenty Long-Haulers and Experts

Fiona Lowenstein

• Publisher: The Experiment
• Year: 2022
• eBook ISBN:
  9781615199112
• Topic: Medicine
• Subtopic: Alternative & Complementary Medicine

The first patient-to-patient guide for people living with Long COVID—with expert advice on getting diagnosed, dealing with symptoms, accessing resources and accommodations, and more.
" The Long COVID Survival Guide aims to give people struggling with long COVID practical solutions and emotional support to manage their illness."—NPR, It's Been a Minute

For people living with Long COVID, navigating the uncharted territory of this new chronic illness can be challenging. With over two hundred unique symptoms, and with doctors continuing to work toward a cure, people experiencing Long COVID are often left with more questions than answers.
A support group in book form, The Long COVID Survival Guide is here to help. Twenty contributors—from award-winning journalists, neuroscientists, and patient-researchers to corporate strategists, activists, and artists—share their stories and insight on topics including:

• getting diagnosed
• finding a caregiver
• confronting medical racism and gaslighting
• navigating employment issues
• dealing with fatigue and brain fog
• caring for your mental health, and more.

This vital resource provides the answers and reassurance you need, to take care of yourself and prepare for what comes next.
Contributors: Karyn Bishof, JD Davids, Pato Hebert, Heather Hogan, Monique Jackson, Naina Khanna, Lisa McCorkell, Karla Monterroso, Dona Kim Murphey, Padma Priya, David Putrino, Yochai Re'em, Rachel Robles, Alison Sbrana, Chimére L. Smith, Letícia Soares, Morgan Stephens, and Terri L. Wilder

Table of contents

• Cover
• Dedication
• Introduction: All You Need Is One Person: The Birth of a Patient Community (and What to Expect from This Book)
• Chapter 1: It Wasn’t the Beans and Rice: Fighting Biased Health Care Systems with Community Care
• Chapter 2: Standing Tall (and Sitting Right Back Down): Living with Dysautonomia
• Chapter 3: COVID Can’t Be Outpaced: Learning Pacing and Radical Rest
• Chapter 4: With Disability, Comes Rights: Navigating the Financial Impacts of COVID-19
• Chapter 5: Closer Than They Seem: Finding a Caregiver
• Chapter 6: The Obstacle Course: Obtaining a Diagnosis
• Chapter 7: Down in the Well, We Will Mourn and Sing: Surviving Mental Illness
• Chapter 8: Am I Making Any Sense?: Navigating Cognitive Dysfunction
• Chapter 9: Not the Only One: Talking About Menstrual Issues
• Chapter 10: The Search for Community: Finding Peer-to-Peer Support
• Chapter 11: Knowledge Is Power: Navigating Long COVID Research
• Chapter 12: Such a Powerful Love: Disabled and Chronically Ill People and Our Long Fight for Justice
• Afterword
• Glossary
• Notes
• Acknowledgments
• Resources
• Index
• About the Contributors
• Acclaim for The Long COVID Survival Guide
• About the Editor
• Copyright