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The First Trick of the Heart
âI never wanted to live this way, in this stateâ
How often have we heard this? We look at a person suffering, perhaps bound to a hospital bed, perhaps on a morphine drip, and in frustrated helplessness we mention to another, âI would never want to live that way.â Sometimes members of the family, discussing the last days of a loved one, mention that the person dying has uttered that very line, after watching a similar situation unfold on a TV show, or in reference to a friendâs troubles, or some such. Even if we thought saying it aloud was unseemly, or impolitic . . . have you thought it yourself? Have you thought âThere, but for the grace of God, go Iâ?
And yet, what happens when you do find yourself in that challenging state? Because we all will indeed die. Could âI never wanted to live this wayâ become âI choose not to live this wayâ? If someone suggests that you could end your own life, would your words or your thoughts come back to haunt youâor even to tempt you?
I am not going to say that you (or anyone else) should enjoy suffering or confinement. Given many options, no one would choose to live that way as an ideal. But to say that you would not want to live in a compromised mannerâone that you in fact have seen but not experiencedâdoes not mean that you do not want to live. What you fear is disintegration, and that is natural, and understandable. I want to talk about what you are losingâand what you are not losingâwhen you face a terminal diagnosis.
And I am here to push you a bit, and ask hard questions. Iâm open to listening to you, but Iâm not so certain these âtricks of the heartâ are tricks. They could just be the truth. And this is too important to not be challenged.
Indeed it is. I hope I am open to all honest questions, and that I take you seriously.
The Integrity of Body and Soul, and the Grief of Disintegration
Sian Beilock, a professor of psychology at the University of Chicago, has written a fascinating book titled How the Body Knows Its Mind, a summary of recent work in neuropsychology that implies that the mind does not control the body like a computer controls a mechanical limb: rather, the impact of body on mind and mind on body is integrated and more mutual than we thought. Who knew? Did you know that
* the ability to control individual finger movements and fine motor skills significantly improves math scoresâto the point where if people are injured in ways that harm fingers, math abilities take a dive? (And this may be why pianists tend to have excellent math skills?)
* psychiatrists are increasingly using Botox injections around âfrown linesâ as a way of breaking a person of persistent depression? (The theory is that severely depressed people cannot short-circuit the feed loop of facial muscles âtellingâ the mind to be depressedâand the Botox temporarily freezes those muscles, preventing the frown signals.)
* walking, even pacing, demonstrably enhances creative thinking? That walking in nature (as opposed to the city) demonstrably enhances concentration?
* practicing an associated hand motion while memorizing (such as holding a glass of wine while practicing a toast) helps your brain remember the scriptâbecause picking up the glass becomes a trigger?
The ongoing research in embodied cognition is uncovering a vast integrated reality of body and mind that we call the human being.
Thatâs pretty amazing stuff.
It is. But to Christians, this integration should not be surprising. We have always held that there is an essential integration between the body and the soul.
For example, in the book of Genesis, the human, Adam, becomes a nephesh (Hebrew for a living being, sometimes understood as soul) when God blows the breath (or Spirit) of life into his created muddy form. The Hebrew understanding of the human being is consistently one where life indicates a wholeness of body and spirit. To live is to be an embodied spirit, and the totality of the nephesh is named as unequivocally good.
In the New Testament, the human being is still understood as a unity of body and soul: the body good, and the soul, good. It is in the New Testament that it becomes more clear that the death of the body, while not destroying the soul (nothing destroys the spiritual aspectâwe may mar it, but we cannot destroy it), is grievously tragic. It is tragic because it is unnatural: as creatures with a physical and spiritual aspect, the body and the soul are not meant to be separated. They exist properly with and for each other. When death is introduced and shaped by Adam and Eveâs original sin, what it introduced was the tragedy of disintegration.
Excuse me: death is âthe tragedy of disintegrationâ? That seemsâunderstated. And abstract.
This may sound rather abstract and theoretical, but it is not. We feel âdis-integratedâ every time we get the common coldânever mind major illnesses. The body is not working like it was meant to: your nose is clogged and it is hard to breathe, you donât enjoy eating much beyond broth and toast, you may be a twenty-year-old marathoner when in good health but now you feel exhausted just getting out of bed. The wholeness of the body is not felt; it feels like parts of your body are working against each other. And your spiritual life? Well, it is certain that you can pray through a cold. But there is no question that illness has a discernible short-term impact on most peopleâs spiritual lives: harder to focus, harder to pray in known ways. The malfunction of the body requires a recalibration of the spirit in a way you wouldnât expectâunless you knew, deep down, that body and soul are integrated.
This is why death is seen as a tragedy in the Christian worldviewâeven though it is the door to life with God, the truest good there is, our original sin made that door different than what it would have been. We can die well, loved by God and in friendship with Christ. But the experience of dying involves disintegration, and it is jarring, unnerving, unwanted, and tragic. And this is why the Christian church teaches that at the end of timeâthe parousiaâthe final judgment unites the souls of those in friendship with Christ with their transformed (or resurrection) bodies. We were not created for disintegration. But that is what we face in dying: the sorrowful reality of disintegration of body and soul . . . at least for a time.
When we say, âI never wanted to live this way, in this stateââwell, God did not originally want that for us either. Yet because of human history, we all face it. And we can face it because God has shaped that dying in way that is not complete disintegration, an unraveling, permanent end, but simply the beginning of the rest of time. The process of dying is naturally upsetting. But rightly approached, it can draw us closer to Godâs own self.
So. God did not intend this disintegration, but our original sin brought it forth. After the fall, God shapes dying as a door to himself.
Right.
Butâand I mean no offenseâif I were facing death and my impending decline looked really difficult, I still wouldnât want to live that way. I would lose too muchâin fact, it would feel like I would lose everything. And if I initiated a physician-assisted suicide, then I wouldnât have to lose so much.
I understand what you are saying. But I want to challenge you a bit here.
What Is âThis Wayâ?
There is a natural reaction of aversion when âthings fall apartââespecially when it is your own body. But it is also right to push back on the statement âI never wanted to live this way, in this state.â What exactly is âthis wayâ? Without being able to walk? With limited memory? With limited abilities to talk?
Sure, letâs use those as examples.
While the loss of any of those human functions would naturally cause real grieving and challenges, there is the reality that we donât define what it means to be humanâand our right to a natural deathâby our functionalities. It is no accident that fifteen disability rights groups have come out swinging against physician-assisted suicide. The most prominent of the groups, Not Dead Yet (deliciously named after a scene in a macabre but slapstick Monty Python movie, where a medieval cart man tries to âhurry alongâ those dying of a plague through argument, and finally a hammer to the head), began in Britain and has quickly spread throughout the Western world, advocating in local and national legislatures, writing articles and op-eds, filing legal briefs, and protesting at âright to dieâ conventions and press conferences. Why? Because theyâall these people living with disabilitiesârightly perceive that able-bodied people believe living with a disability is literally âa fate worse than death.â In fact, they are worried that...