
A Guide to Duchenne Muscular Dystrophy
Information and Advice for Teachers and Parents
- 232 pages
- English
- ePUB (mobile friendly)
- Available on iOS & Android
About this book
The prognosis for individuals with Duchenne Muscular Dystrophy (DMD) is improving, with some men with DMD living into their 30s and 40s. More vital than ever, this book helps teachers and parents to support children and young people with DMD with their education and transition into adulthood.
Leading experts on DMD explain Duchenne and its impact in easy-to-understand terms. Going beyond physical management, particular focus is put on learning and behavioural issues, including speech delay and difficulty learning to read, as well as common comorbid conditions, such as ADHD, autism and OCD. Raising aspirations, the book gives guidance on effective support in the classroom and advice on the transition to adulthood, employment and independent living.
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Information
Table of contents
- Cover
- Title Page
- Contents
- Introduction: DMD in a New Landscape
- 1. Why Some Children with DMD Have Learning and Behaviour Difficulties
- 2. What Are the Learning and Behavior Risks in DMD?
- 3. The Physical Management of DMD in School, College and Beyond
- 4. Early Intervention for Reading and Learning
- 5. Behavior Solutions in DMD
- 6. Talking to Children about Duchenne Muscular Dystrophy
- 7. Having a Road Map for Life: Creating an Education, Health and Care Plan for Duchenne Muscular Dystrophy
- 8. Taking Charge of Transition to Adulthood in DMD
- 9. Getting the Life You Want as an Adult with DMD
- Biographies of Contributors
- References
- Subject Index
- Author Index
- Join Our Mailing List
- Dedication
- Copyright
- Of Related Interest
- Endorsements